Hi all, figured I would give a little update. Over the last month I have seen 2 neurologists, a neuromuscular doc, a rheumatologist, a gastroenterologist, and an allergist. All they have determined is that I have SFN, a 3mm Chiari, high sed rate, and I’m allergic to mold, grass, trees, pollen, dust mites, and sanity.(look, I made a funny)! Ruled out all autoimmune diseases, as well as diabetes/prediabetes. Now it looks like I will be contacting the Mayfield Clinic in the near future, to hopefully schedule another appointment. I will be pushing to persue all of the rare diseases that coincide with Chiari Malformations. Hopefully I find something this time! Have a good day everyone!
I had my surgery at Mayfield with Dr. Ringer and had a wonderful experience! I hope they are able to help! :)