I am hoping someone can give me some insight here, I am curious as to if there is anyone who has had surgery maybe about ten years ago, or less or more, but still has (or started getting) symptoms or even possibly new symptoms? I almost seem to feel alone on this. I have had different neurologist give me an MRI and say everything looks fine and that's it... So I am stuck with pain, numbness, and whatever else that I have to deal with, with everyone saying I should be fine. No kidding I wish I could be fine!! I had surgery for an 18mm tonsil back in 2002. I did good for some odd years but slowly things came creeping back with newer symptoms I also had two boys via c-sections in between that time. I am almost wondering if it is in my head and I should just continue to just deal with it..?
I’m sorry this is happening. If you can, try to get yourself to a Chiari specialist. Neuro’s are good for a lot of things, but generally not for helping Chiari patients! To a trained eye your MRI may tell a different story, or simply giving a list of your returning symptoms to the right doctor may get the ball rolling again. I hope you get some help very soon. If its ok I’ll send a little prayer:)
Jenn
Nev,
Please don't feel alone. I am sorry your symptoms have returned. May I ask what your symptoms are? It may be Chiari and it may be a related disorder. Hopefully we can point you in the right direction & get you some help, but please never think you have to just deal with it when there might be something that can help. Have you seen a pain mgmt specialist? They are much better with pain issues than NL's & better diagnosticians. You can always send a copy of your MRI's to NS's for a consult. I also became ill in 2001 and very recently had a major setback. I understand what this does to you mentally as well as physically. Please know you are among friends and we do understand.
Tracy Z.
I am sorry too. I guess it just goes with the territory. No one wants to deal with me either. All pain management wanted to do was put me on methodome (sp?) and I refused to take it.
And all I want is to be able to function and enjoy my grand "toys". Those little ones are what keep me sane and going. :>) But every neurologist I've seen told me to go back to my neurosurgeon and now they won't even see me. Oh well, that's life.
If you find any answers, please share.
Good luck and God bless,
Carol in Las Vegas
Decompressed May 2005 18 mm
vp shunt August 2005
7 shunt revisions
Decompressed 2007, duraplasty 2008 – I too suffer with pain, numbness and vomiting – and yet I’m told I’m fine. I wish I had answers for you.
Decompression isn't a cure only a symptom reliever. You can re-laps after decompression. Praying for all of us.