@Stephanie14 my 11 yo daughter was diagnosed in August. We are still shuffling through all the medical work ups and drs. I’m so sorry she is suffering. I can honestly relate so much that it makes me cry. No one, especially not a child should have to go through this. Please feel free to message me if you want someone to listen. I’m here, I hear and understand you and your daughter. Please know that my daughter and I will be praying for you both 
I don’t think anyone can better understand what it’s like to be a parent of a child with Chiari than one who has experienced it. I’m sure @Stephanie14 appreciates your reaching out.
Stephanie, how are things going for you and your daughter now? Any new wisdom to share?
Seenie from ModSupport
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