Has anyone had a CSF leak not related to decompression SX?

General
1

Dr. Frim feels really confident that my daughter has a CSF leak (she had several prior surgeries for a clival tumor). I was wondering if anyone else has had a CSF leak prior to decompression surgery? The big question is the CSF leak making the Chiari worse or is the Chiari pressure causing the CSF leak. Something that remains to be seen.

I was just wondering about what anyone else has experienced.

2

Genetics does not think she has any signs of EDS. She has a rare genetic disorder called Axenfeld-Riegers which is associated with a short clivus which Dr. Frim confirmed she has.

So many puzzle pieces to put together. Thank you for your help.