Oh my gosh! I had my surgery in Feb of 2015. My symptoms started back in early 2017!! I would absolutely LOVE to be part of a research study on symptoms coming back!! I have been looking into TMJ and tongue tie as issues too. I asked to go part time. I think if I can not use FMLA as much, while part time, I will be fine. (I hope). The brain fog is what is killing me! Plus, I am unsteady, falling and having a lot of trouble finding words. I am an intelligent woman, I have never been this way before. I contributed it to my age and the stress of the move and new job, but I have now been here two years, itâs about time it be over!!
Have you ever tried Botox for the right muscles? Connecting those muscles up so high on my skull has made it miserable back there.
no I have not tried Botox. if you have never been on conquerchiari.org go there to read on some of the studies they have done. they may still be taking on the 1000 chiari research. I helped them by doing the on line cognitive testing questions and also sent them ALL my mri disks for their research. anything I can do to help us and future patience I am will to do. the research lab is in Akron Ohio (my old state).
as for tmj, brain fog, ear issuesâŚall seem to go back to chiari issues that I have read about. the research even points out learning disabilities are part of chiari. everything you have stated having issues with, well, ME TOO!!! most of them have calmed down since im not working anymore.
as for intelligent, you must be doing what your doing for a living. I understand that frustration, being a college grad myself, I get the feeling of worthlessness. that is where my home support (great hubby) comes to my rescue and reminds me it is Chiari not me.
hang in there and you will learn how to live with this monster. im trying, and its this support site that really helps to let us know we are not alone.
Thanks, Joli
Itâs been a pleasure talking to you. I am religious and pray daily for relief. I guess itâs my lot in life. Gives me empathy for others, for sure!
Love, Katie