Don't really no what to do anymore,

I think my nl and pcp dr are the only ones trying to help. I've been threw test for ms and other things. my nl sent me to a ns to see about the chiari and he really did'nt want much to do with me he said it was mild and he don't want to touch it. so i was sent a ms, he was a jerk and he acted like i was nuts, he comes in asking me what i thought was wrong with me. then he say you don't have ms or anything like that wrong with you, stress can cause spots on your brain and the chiari is not that bad so stop having mri and not to go back to the nl again. but the ns told me that the nl and i have to figure on whats wrong cause i am having symptoms and i have a hard time walking, my left knee gives out some times my feet hurt, i get pain in hip and lower back, headaches, my eyes bother me and so on. so i go to a knee dr and he says that my knees are not causing the problems with walking. he had me walk with no shoes and asked if i used a cane to walk? i said no, he said i would think about making a cane your friend at time, and he said the problems you are having your nl should be working on cause it sounds like your lumbar spine so have him look at it, so know i'm about to scream, i was gonna call the nl and tell him i was not coming back,but know the orthopedic surgeon wants me to go back. plus i have carpel tunnel in my left hand so i got to see someone about that one of these days. i really don't no what to do anymore. help

I'm soooo sorry for you. I have been right where you are. I seen 20 differant Dr's. They tried to send me to P.T. But I was far to sick. I found out I had all my stuff by getting my patholigest report on the MRI and typing evrything in and point blank asking them why!!! It was a flippen night mare. It was a long road befor I had to fire my Dr. get a new one. Start all over. I even had to get my own hoveround and when I read thier reports thy all said. She arrives on a hoveround. I even had Dr. steal my records and make it hard for my new Dr. to figure it out.They stole anything partaining to my MrI and all the dealings with all those Drs I saw. It only took me 2 mo to figure it all out. I bought my own Mri handed them to Tom my Dr he couldnt belive it. He still cant. I'm glad everything is in the light now and we can at least see the forest for the trees. Its such a stressing long road. I honestly feel for you. I hope you get the ansewers you are searching for. Much luck and love to you. God bless

thank twana, some times i think these dr want you to think your nuts.

Mitzi… you sound just like me. Im flat footed though, which can cause knee pain. but when i described the pain to my podiatrist he referred me to a rheumatologist. Honestly I dont there’s a type of specialist I havent seen.
And guess what… Ive caved in… and im on anti depressants now.
:frowning:
Hope you can find a nicer NS! Xx

yea i've been to a foot dr and he has done xrays which he did'nt find anything but he gave me a brace which seem to help. i've been threw all kinds of test already.

bozzylozzy said:

Mitzi.. you sound just like me. Im flat footed though, which can cause knee pain. but when i described the pain to my podiatrist he referred me to a rheumatologist. Honestly I dont there's a type of specialist I havent seen.
And guess what... Ive caved in.. and im on anti depressants now.
:-(
Hope you can find a nicer NS! Xx

no i have'nt and the nl that was the ms specialist said NO MORE MRI'S AND TO STOP GOING TO MY REG NL PERIOD. but i am gonna go back to him one more time cause he's been trying to help me

Emmaline said:

It certainly sounds like you need a new NS. Did you have a Cine MRI?

i am going to ask him when i go back to see him.

Beeba said:

Can't believe I am saying this - stick with the Nl. If he is the one helping stay put. Why can't he order the cine MRI?