Chiari Pain

HI everyone I was diagnosed over a year ago with Chiari and my symptoms of course have worsened this past year and I’m being told I can’t continue with this condition as it’s worsening. I am contemplating surgery this year and am speaking with the head of neurosurgery in University of Miami. I am awaiting all the feedback. Anyhow I just had a question…
When your symptoms flare up do any of you get a tightness in your face and jaw as if you have a bad toothache with pressure in the face and tingling?

No - Funny enough I started with a dentist, face doctors and ruled all that out in fact an oral surgeon even took my wisdom teeth out thinking that’s where my pain was coming from before we found the Chiari. I guess you’re right about the pain going everywhere the body and muscles tightening up. I just can’t deal with the pain when it hits my face, everything else I can deal with but the pain in my face is the worst.

Thanks.