My 26 year old daughter was diagnosed w/ a type 1 Chiari malformation in Mar. Since then, she’s found no help from the neurologists, saying it is “mild” but her symptoms are severe, to the point of being unable to function normally (vertigo, dizziness, loss of balance, weakness and numbness in right arm/hand and leg/foot, head pressure and pain, back pain, mental FOG…) She was accepted at the Chiari Institute,Dr. Bolognese, but I’m concerned by the instances of lawsuits and conflicting anecdotal info–not to mention that after scheduling her appointment, they haven’t answered or returned calls or emails for more info. I haven’t found a good source for reliable reviews of Chiari neuros or facilities that know how to treat this #%!$& disorder. Anyone have suggestions?
Hi I too, am being seen at the Chiari Institute (same Doctor, too). I have heard mixed information and of course about the lawsuits. Honestly, I am afraid, but I have heard worse stories about the hospitals here in Syracuse. I am Scheduled for surgery for June 4 (about 2 weeks from now) I have decide to go through it because my condition is getting worse everyday. All I can say is pray, research, and do what you feel in you heart.
I mailed my mris and they said it will be 2-3 weeks to get back to me. I can’t wait that long!!! And I want personal attention and I feel like you’re just a number there.