I was diagnosed with Chiari Malformation on 12 Aug 13. I am schedule to see a neurologist on 18 Aug 13 @ Johns Hopkins. I have suffered from headaches/migraines, dizziness, fainting since I was a sixth grader (currently 43) and most recently blurred/double vision. The blurred vision is so bad right now that I can barely function. Has anyone else dealt with this? I have had my reading/driving eyeglass prescription 3 times this year alone and still can't see with or without them. Any help or info on this is most helpful...at least until I can see the neuro next week. Thanks and I pray everyone is in good health and spirits...
You have found a great place to get support and info.we know the road you are going down and am so glad to get to talk with you to help in any way we can.My journey was similar to your’s it took me 28 yrs. to find answers.I would tell you to please get a specialist right away if you go through the reg. medical community you’ll probably not get the help you need,and it looks as if they have not helped.I feel for you on the path you’ve been down it’s a nightmare and the only help is through good chiari Dr.s they get it,wish you the best keep posting.Praying for you.
Thanks Lynn! It has been an extremely challenging journey of which I'm sure is just beginning with this recent diagnosis. I have mixed emotions and I'm very confused. While I'm happy to know that all my years of pain and suffering were not "my imagination", I'm saddened by the diagnosis. At least now I know and can move forward with what it appears will be an even more challenging journey. Simply thankful that I've found this site and support. Thanks for your prayers. I'll continually pray for all and wish everyone the absolute best!
Lynn Messer said:
You have found a great place to get support and info.we know the road you are going down and am so glad to get to talk with you to help in any way we can.My journey was similar to your's it took me 28 yrs. to find answers.I would tell you to please get a specialist right away if you go through the reg. medical community you'll probably not get the help you need,and it looks as if they have not helped.I feel for you on the path you've been down it's a nightmare and the only help is through good chiari Dr.s they get it,wish you the best keep posting.Praying for you.
Hi Sherita(:
I'm sorry it's taken so long, and that you're suffering with these symptoms. The symptoms you are having are red-flag Chiari symptoms. As Lynn said, you need to contact a Chiari specialist. Regular Neurosurgeons and Neurologists aren't very educated in the Chiari field, therefore; will be of no help. Another important thing is research. Research, research, research. Though, be careful, some information out there is false. I have my own website you could start at, if you'd like! www.screwedontight.com . Chiari is very difficult to live with but just stay positive. Stressing is the worst thing to do, as stress aggravates the condition. Always go with your gut instinct and never lose hope!
Hugs,
Macie
Macie, thanks sooooo much for your help! I was starting to be discouraged by all the sites I reviewed with the seemingly dead end info. Again, I very thankful to have found this site and I appreciate you providing the link to yours. I'm going to take a look and go from there. I'm pretty sure over the next few weeks (heck, who am I kidding - next few years it appears) I'll be posting and asking questions, etc.
ScrewedOnTight said:
Hi Sherita(:
I'm sorry it's taken so long, and that you're suffering with these symptoms. The symptoms you are having are red-flag Chiari symptoms. As Lynn said, you need to contact a Chiari specialist. Regular Neurosurgeons and Neurologists aren't very educated in the Chiari field, therefore; will be of no help. Another important thing is research. Research, research, research. Though, be careful, some information out there is false. I have my own website you could start at, if you'd like! www.screwedontight.com . Chiari is very difficult to live with but just stay positive. Stressing is the worst thing to do, as stress aggravates the condition. Always go with your gut instinct and never lose hope!
Hugs,
Macie
No problem! I'm always happy to help! I'll keep an eye out for your questions and try my best to answer them! Take care.