Appointnent on Monday

On Monday, I meet with my new NS at Cleveland Clinic. And I must admit, I am excited and nervous at the same time. This is the fourth NS that I have seen in a year. I really hope that this is the one because the process of finding a doctor is mentally exhausting. It literally eats away at my sanity each time.

I like the fact that this doctor has asked me to bring ALL my medical records that pertain to my neurological issues with my scans. This last scan said that I have developed a syrinx even though it's just 1 mm. That's 1 mm too much for me. I have already stated that I need to be evaluated for a retroflexed ondontoid, so there is no confusion. I will leave that office with my surgery date.

I am sooooooo tired!!!!!

Ahhh! Just a few days away nykki! The NS shopping is exhausting…and so much pressure to learn about chiari, related conditions in order to make an educated decision about treatment. Not to mention seeking as much physical comfort in the meantime. It feels overwhelming and I’m just starting. I hope you have a good experience with the NS in monday! Do you mind me asking who you are seeing? I’m in St. Louis and am considering traveling for a second opinion.

Good luck!