Anyone Else Deal with This?

Lori,

No you were not rambling. Sharing and healing it what you were doing. We know how CM/SM effect us physically, mentally, emotionally but when we added the extra complications of lost love, death, even painful memories it add more and more to us. After reading your reply, it hit me as to why I was in the dumps and fighting to rid myself of the doldrums that I have been experiencing.

Though not as new as your loss of your mother ,I am sorry for your loss of her, I understand. I lost my father 9 years ago on April 30th. He was terminal with cancer and in hospice, I wish I could have been there for him and with him but due to a family conflict I was unable to be there. What pains me more is that he was holding on to see his granddaughter, Katrina. Like your mother he told me exactly what he thought of me and how I made him proud. and again like you I wish I was able to be more by being a teacher like he was, he was my inspiration to be a teacher, but I feel that I could never measure up to him as he was in his classrooms. I am out of the teaching profession now; and thanks to CM/SM I always wonder if I will get back into it.

I am also losing my grandmother to dementia and Alzheimer's. It is too the point to where she does not even know me as her grandson. She thinks I am my father and she begs me to take her home with me and my family. I remember her as a proud and proper woman who would do anything for her family and I feel helpless to do anything cause there is nothing I can do. She was through it all child/teen through the depression, her husband was in WWII, and she buried him, my father, and two of her great grandson (my two boys who miscarried), plus her brothers.

I know it is sad and hard but I continue to learn and believe that if they can go through all of this. I can do my best to get through my day and help others as others help me. If anything the main thing that I remember from childhood is always, ALWAYS, treat people as to how you want to be treated for you never know when you will need help.

Their teaching as well as your family teachings to you, make us who we are and keep us strong so we can continue and help others. this way we live with their legacy and continue to build our own legacy that intertwines with all of our heritage.

Now I am the one rambling. We might have been twins separated at birth cause we both say we are rambling but in the reply we always assure each other that the previous was not rambling - only family can do that and we are family.

love, hugs, and prayers for you and your brother (I know B-I-L) but hey your my sister

Mike

hi mike

how the heck do you know just the right time to write

your kind and supportive words are more helpful than you can ever know

thank you for being the man you are/ honest and compassionate

i wish we could all meet in person and give one another a huge hug

thanks again mike for sharing yourself with me and the others here

you are great and i say that with all sincerity

love ya

your chiari sister lori

ps

still have this british keyboard and still cannot figure out how to use the punctuation marks and other keys/ ha ha ha

when i use my little computer i can write properly/ too lazy to go upstairs and get it/ ha ha

Awe. hi Lori, I know and understand everything you're saying. I'm sorry you've been suffering with pain. :( I totally get the anxiety behind going long distances and making any kind of plans. I know it''s hard, but try not to look ahead too far and just take one at a time. I do.

My son is graduating from HS next month and I'm planning a huge grad party for him (along with prom). Am I crazy?? Yes I am!! lol Friends & family are asking me why am I "doing this to myself"? "This is too much on you!!" My answer is that he's my son and I would do anything for him. He gives me my strength to do it. Lori, your daughter gives you your strength! She's your baby and will do anything for her too. YOU ARE AN AMAZING AND COURAGEOUS MOM & PERSON!!

I'm not going to let my Chiari dictate my life. Easier said than done, I know. If I feel awful,I feel awful, but I'll be happy because my son is only grad. from HS once. My daughter is a lead in a play also in June. Happy stuff to look forward to and it keeps my chin up. Trust me, everyday is a struggle. I hurt daily and I too suffer from anxiety. Chiari doesn't define us, but it's a part of us and I've chosen to become empowered by it.

Love and gentle hugs sent your way my friend,

CHRISTINE XXOO

HAPPY MOTHER'S DAY!!

thank you so much christine

you are a true inspiration to me and others/ you have been through so much yet you carry on and live life

thank you for your kind words/you are a dear friend

many many thanks

love

lori

the way I see it, the only things in life you regret are the things you DON"T do. so go. Always go (unless you're having a super bad day of course) My new year's resolution was that I would say "yes" more to doing things. If it gets bad when you show up, then you go home. But the point is that you tried. That does something to your mind and you feel good about trying. If the Chiari stops me from doing something, that's okay. But I don't ever want my own fears to stop me again...