I am wondering if anyone else out there has had the brain decompression surgery and had some of the symptoms slowly start coming back?
I had problems swallowing a few months back to the point where I am choking on a regular basis. I am stumbling while I walk. My neck pain is back, with shooting pain into my shoulders. And my migraines are becoming more persistent even with the medication regimen that I am on. Even the numbness in my hands and feet are back.
I am lost. I am uncertain if I should call the neurosurgeon, the neurologist or go and see a pain specialist.
Idea's anyone? I went from constant pain to back to the old me to constant pain...
You should contact your neurosurgeon immediately. I recently had decompression brain surgery, my neurosurgeon told me that I will have follow up Cine MRI's at 3 months, 1 year, and 5 years post op. In the mean time anytime my condition changes for the worse I should call the office as soon as possible.
Thanks. I will contact them Monday. I was praying that this would be a one time thing. I am disliking the symptoms coming back :( I pray that you get good results and less symptoms!
I also am having returning symptoms after 4 years. I have had MRI and CT they both look ok. Now they want to do a lumbar puncture. Has anyone had a LP and if so did it make symptoms worse or better…
question what happens if the NS does not believe that it is chiari related. the NS who did my surgery says it can not be chiari related and I have seen 2 more NS who are knowledgeable about chiari and it seems like they won't even consider the chiari is coming back.
The 1 NS did say as long as I had the symptoms prior to surgery; it would take that long for all the symptoms to clear up.
What none of the 3 NS's understand is that I am having some brand new symptoms like choking, burning in feet & hands, and others that can not recall right now.
what should I do, since it seems we are in the same boat just different time frames; I sam just 1 year post-op?
Well, I called the neurosurgeon and his response was, “Your Chiari was fixed.” I will be going for testing to verify my spine now. Sigh…
I’ll keep you all updated and please keep me updated as well! God bless you all!!
Hey there! Just letting you know that you are not alone. I had my surgery in 2010 and within the years my sympoms came back and slowly got worse. I have developed more symptoms than I ever had. Kinda scares me which is why I am going back to the doctor but mines stated in my arms and legs going numb and now they are out numbering me. Please go to your doctor and keep him/her informed because that will keep you in the loop on what is normal and what is now! and remember that surgery is not always a guarantee!
I was told that this was not normal but that it cannot be Chiari related. I am waiting for the local hospital to call me so that I can schedule my CINE MRI of the spine. Who knows. I guess I will take it one step at a time.
I have a friend that had decompression surgery. She is currently having issues with increased pressure. She has had two lumbar punctures to remove fluid and it helped tremendously. She will have a third to confirm that removing fluid to decrease her pressure is helping her. They are supposed to put a shunt in the drain CSF fluid so the pressure doesn't build up.
I had decompression done in Sept 2011 and in Sept 2013 I started having symptoms again… it was found that I had managed to pinch a nerve that is normally concealed at the base of the skull… I started seeing a chiropractor that does Active Release Therapy (ART)… he doesn’t crack my neck just helps manipulate it. and so far the exercises he has given me to help stretch, elongate and strengthen my neck have worked well to combat the symptoms.
