Why do Symptoms come and go..even after surgery?

Hi...


I was wondering if anyone knows why Sx's wax and wane..even after surgery. I know surgery is not a cure..but a treatment.

thanks,
lori

hi,
do you know what type of surgery you had, i mean what did they do, did they put a shunt in?
also how long was surgery?
did you have and fluid leak?

it can take up to 1yr to have things settle down, some people find that they still have problems and some find they dont, also others have found that they still have symtoms but more mild then before surgery,

you have to be patient with this, remember still be care on what you do, this is for life, i know you know that its not a cure but a reliever, so still take it easy,

i hope it helps even in a little way,

Hi…I had a posterior fossa decompression…c1 lamenectomy…no shunt…no CSF leaks. I guess I just was hoping for a cure-all, ya know???

joelene hossack said:

hi,
do you know what type of surgery you had, i mean what did they do, did they put a shunt in?

also how long was surgery?

did you have and fluid leak?



it can take up to 1yr to have things settle down, some people find that they still have problems and some find they dont, also others have found that they still have symtoms but more mild then before surgery,



you have to be patient with this, remember still be care on what you do, this is for life, i know you know that its not a cure but a reliever, so still take it easy,



i hope it helps even in a little way,

Hi Gang…

Many thanks for your replies and making me feel welcome!!!

God Bless,
Lori

hi lori.

we do look at it for a cure as we are so frastrasted with it all, wewish it could go away, we all understand that,
please give yourself time to heal, and recover, listen to your body, it will tell you how it is.

i go for MRIs on the 21st as i havent had a recheck for two yrs, im hoping surgery will be an option for me, yeh and think of it as a cure, i get sick of it, no one likes feeling like this.

i think thats why it makes these sites so much more inportant than just a chatting site, we all understand how we are all feeling, and how tough it is, if you want to moan, get angry, cry, or laugh, we all share that with all,

so get rest and we are here for you anyway that we can, if i could i would be there phyisically, but thats hard, lol im all the way across the other side of the world. nice thought though,
take care, please keep us posted on how your recovery is going, and we are here for you

at the end of the day we have the same type of symtoms. my brain has gone foggy so im saying sorry if mistakes apair,
just in different degrees, i think as a suffer you learn to work though how your own body works, and the changes it makes.

there has been alot of times where i thought there was apattern but found it changed, it was easier for me to know that in four weeks i would be on my way down again, but not anymore i have to learn to adapt to it again, the hardest part is u just learn to cope with something then you get something else. My problem is i have 8mm chiari, i have lesions on brain to indicate MS, i have gallstones, so alot of pain, but unsure what it is related to, i had a cyst on spinal cord, which was removed, but left now with bone pain after having T7 T8 T9 removed and put back in, so its confussing for the docs that are working with me, and now my blood pressure and heart are playing up, so have had tests for all that, every little thing that happens i get sent for tests, so the specialists have more amo, to know weather its my brain or body, so far its my brain, ba that gallstones, but unsure with that yet,

anything i drew that out abit long, sorry lost my point now,

chiari you are born with it, its a type of spinal biffita, there are 3 types, somepeople have it but never have symtoms, a lot of times it has been triggered by a bang to the head, eg car accident, a fall.

i haave to stop there im been trying to type this for an hr, im weak and soo tired,