Hello all, just a bitt of background on me. first I am 35 male and have had bad head aches, occasional blurred vision, cant really call it ringing of the ears I would describe it as hearing the ocean in my ears like listing inside a sea shell, fine motor control problem's irritability, bed wetting, for as long as I can remember. my mom took me to the pediatrician who would check me out but no test was done till I was about 12 or 13 when he sent me to have an EEG that came back normal and he said to treat the head aches with Tylenol and deal as best I could. yea I know a quack. he also said it was all likely due to the serious auto accident I was in as an infant and nothing could be done just to manage and cope.
at about 16 I started having numbness in my hands and feet he sends me for an EMG that comes back normal and say to continue coping.
around 20 I started having day time issues with the bladder went to a urologist whom all he wanted to do was prescribe drugs and not really find the cause tried that for awhile and it did not really help.
so I did what I was accustom to and continued coping about 27 I went to a new doc laid it all out to her and she looked at me and says wow this has been going on for a long time, I don't think I can help you. at this point I just pretty much gave up and said oh well this is life deal with it.
about a year ago I met a new friend who has a child who has spina biffida and to look at the child you would never know, I know a couple of other's who have it and it is obvious, the more I got to know the family and learned more about the child and what he goes through the more I said wow this sounds way to familiar to me. I did some research and learned more about it till finally I went to my family doc and demanded he check me and he laughed at me and says if it was anything like that it would be obvious but I finally got him to send me for x rays and an MRI and when the results came back it said mild scoliosis, no degree was stated. cervical spinal stenosis. Chiari malformation compatible with type 1. there was a report on all the vertebrae except c1/c2.
I finally had answers I was not shocked I was relieved and the look on his face when he had to admit something really was causing all this that was not the accident I was in as an infant was priceless. he then referred me to a neurosurgeon who I will see in September.
sorry for the long post I just wanted the whole thing out so to get the best opinion's possible after looking at the MRI pics I seen a lot of discoloration in the spine through the cervical vertebrae that in my comparison to other pics online line appears to be a syrinx, I ask my doc he just says its not on the report and to wait till I see the neurosurgeon, I am concerned about the lack of a report on the c1/c2 vertebrae. could they be fused? I know its hard to say just wondering if that is common? what is in your opinions the likely hood of needing a shunt? and if I did would it be done at the same time?
thank you in advance for your reply's,
hope this was not to hard to read a s I have always had a hard time keeping my thoughts in order.