I finally have a apt to see a NS on July 31. After a year of mri"s,blood work, nerve test to also check for ms. My mri say the cerebellar tonsils are low lyoing projecting 7 mm below the foramen magnum and white matter which could reflect ms. my cervical mri shows spondylosis and degenerative disc disease most prominent at c5-c6,> I had a spinal tap which came back not showing anything, but they want to keep a eye out for ms cause there are 3 other people in my family with it. my symptoms i get are pain in eyes, some times i have a hard time sneezing and then i feel the pressure start building up in my head, numbness in face, pain in feet i have to wear a foot brace on right foot,and some times my legs feel weak making it hard to walk, my arms get weak, my neck hurts and some other symptoms. i'm going to get away for a couple of nights and take my son to a hotel with waterpark at frankenmuth in michigan and hope that helps me some thanks
Good luck at your doctor's appointment! I'm still waiting for an appointment... I hope things go smoothly for you!
-Katrina W.
thanks, i don't really have any one in my family to talk to cause they really don't no what chiari is all about and they thought i was crazy for years before i found out about it. just some times i feel like giving up but i don't want to do that cause my kids need me