ok i dont know if this is related to chiari but it scarey to me.. for the past week my son keeps having nose bleeds and at the same time he is having alot of trouble holding his bladder until he get to the bathroom, i discovered yester day that he said he couldnt get to the potty intime so he has been peeing beside his bed on the floor.... he is even wearing pull ups at night because insurance finally approved his seroquel so now i gotta let his body get use to it again, but he wont pee in it.. he wakes up and knows he cant make it in time so he said he leans over beside his bed and pees... now he keeps crying sayin his legs hurt.... i know leg pain is a main symptom, but it has never really made him cry and complain like this before.. im worried this is just the beginning of some bad symptoms... i mean he has been complaining of a headache for the last few months and how is feel like he is gonna be sick all the time, but he is still a very happy child... but this has me very worried about him.. i wish it was the 12th already cause he sees the neurosurgeon... 2 more days of waiting..
My son who has Chairi as well has been getting nose bleeds but our neurologist said it is unlikey it is caused by his Chiari. I hope you can get answers from your neurosurgeon. The waiting is the hard part. Hope he feels better soon