My son has cm with syrinx (so I don't know how it feels). I wanted to know if this is Chiari related.....he is complaining of pain on side of his neck. Thanks!
I have CM 1 and a syrinx. I get pain on the right side of my neck all the time. it gets really tight like a spasm sometimes it shoots up to the right side of my head. Try giving him an Ice pack I know it helps me when my neck hurts.
Where is his syrinx? I have pain with my syrinx's on the sides of back where their located at in thoracic. I do have pain in the neck area but it's more in the back of neck.
I have Chiari with a syrinx too. I have pain in my neck all the time, but I periodically get kinks on both the right and left side that make it even worse. I have a really bad kink on the right side of my neck right now. Like Frances said, the only thing that really helps is an ice pack. I’m so sorry your son is going through this:( I hope he feels better soon!
I'm so sorry that you are going through this with your son. I have terrible neck pain and heat helps me. Some people ice helps and others heat helps. I use flax seed filled microwave packs. They really hold the heat and are very comforting. I hope your son finds some relief.
You can use flax seed or white rice for the heat/cold packs. I keep a few in the freezer for cold and then a few out for heat. They are really great for neck pain because you can make them to lay around your neck.