# Occipital neurostimulator

**URL:** <https://forum.chiarisupport.org/t/occipital-neurostimulator/4924>\
**Category:** General\
**Created:** [April 17, 2014, 4:59pm UTC](https://forum.chiarisupport.org/t/occipital-neurostimulator/4924 "2014-04-17T16:59:45Z")\
**Posts on this page:** 6\
**Page:** 1

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**Author:** ![Melanie](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.chiarisupport.org/melanie/32/2053_2.png) [@Melanie](https://forum.chiarisupport.org/u/Melanie)\
**Post date:** [April 17, 2014, 4:59pm UTC](https://forum.chiarisupport.org/t/occipital-neurostimulator/4924/1 "2014-04-17T16:59:45Z")

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Went for my surgery yesterday for the trial occipital neurostimulator for my headaches. I will keep you all posted on how it works. Not sure if it will help with the pressure though. Gonna post a couple pics. If the trial works the will implant the permenant device. Oh don’t mind the lovely haircut the neurosurgeon gave me.  
[237-image.jpg](https://canada1.discourse-cdn.com/flex027/uploads/ben_chiari_community/original/2X/4/42a417592636f6fa5fcfd72e4c0411c5fd82fe18.jpg) (1.41 MB)  
[238-image.jpg](https://canada1.discourse-cdn.com/flex027/uploads/ben_chiari_community/original/2X/4/42a417592636f6fa5fcfd72e4c0411c5fd82fe18.jpg) (1.41 MB)  
[239-image.jpg](https://canada1.discourse-cdn.com/flex027/uploads/ben_chiari_community/original/2X/4/42a417592636f6fa5fcfd72e4c0411c5fd82fe18.jpg) (1.41 MB)

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**Author:** ![Anglyn](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.chiarisupport.org/anglyn/32/676_2.png) [@Anglyn](https://forum.chiarisupport.org/u/Anglyn)\
**Post date:** [April 22, 2014, 2:12pm UTC](https://forum.chiarisupport.org/t/occipital-neurostimulator/4924/2 "2014-04-22T14:12:56Z")

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Have you noticed any relief so far? Hopefully this will help you!

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**Author:** ![Melanie](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.chiarisupport.org/melanie/32/2053_2.png) [@Melanie](https://forum.chiarisupport.org/u/Melanie)\
**Post date:** [April 22, 2014, 2:32pm UTC](https://forum.chiarisupport.org/t/occipital-neurostimulator/4924/3 "2014-04-22T14:32:17Z")

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It has been rough to determine at times. The first few days a wire was disconnected so the unit was not running correctly once the rep from the company talked us through a check of the unit and how to fix I was able to turn the current up without feeling like my brain was being shocked constantly. Still wake up with migraines, they are like 20/10 when I wake up and have to medicate but after that they seem to have decreased in intensity during the rest of the day from 9/10 to 5/10 so with the trial so far a little more manageable. I go today to remove the trial unit and see what they plan as far as the permenant one. I still feel pressure also but do have IIH also so until I speak with the neurosurgeon I am unsure of what they are gonna want to do. I am gonna try to put a couple more pics with a better look without the dressing.  
[241-image.jpg](https://canada1.discourse-cdn.com/flex027/uploads/ben_chiari_community/original/2X/b/b1cd1b9b71e517cc15ef7eb86213c1b2b2e62704.jpg) (1.16 MB)

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**Author:** ![Melanie](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.chiarisupport.org/melanie/32/2053_2.png) [@Melanie](https://forum.chiarisupport.org/u/Melanie)\
**Post date:** [April 22, 2014, 2:33pm UTC](https://forum.chiarisupport.org/t/occipital-neurostimulator/4924/4 "2014-04-22T14:33:47Z")

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Pic 2  
[240-image.jpg](https://canada1.discourse-cdn.com/flex027/uploads/ben_chiari_community/original/2X/1/106d814498a59c12594165d5530c3fdcead9fdf8.jpg) (1.03 MB)

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**Author:** ![jcdemar](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.chiarisupport.org/jcdemar/32/1226_2.png) [@jcdemar](https://forum.chiarisupport.org/u/jcdemar)\
**Post date:** [April 22, 2014, 3:39pm UTC](https://forum.chiarisupport.org/t/occipital-neurostimulator/4924/5 "2014-04-22T15:39:47Z")

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Melanie I hope to heck this works for you. I know you have been in a lot if pain.

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**Author:** ![Melanie](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.chiarisupport.org/melanie/32/2053_2.png) [@Melanie](https://forum.chiarisupport.org/u/Melanie)\
**Post date:** [April 23, 2014, 1:17am UTC](https://forum.chiarisupport.org/t/occipital-neurostimulator/4924/6 "2014-04-23T01:17:13Z")

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To let you guys know I found that the stimulator was a great help with my headaches. They removed the trial today and within an hour my headache and pressure was at a 10/10 and before they removed it I was able to function without taking migraine medication constantly. So I will be getting the permanent stimulator implanted in June. If you feel this might help you please have a conversation with your NS about the possibility of at least the trial. It may reduce your daily medication by at least one a day. As if we Chiarian’s don’t already take enough just to get though our daily lives. I am not saying it will work for everyone, but maybe some of you can get some relief.
