# No Chiari Headaches **URL:** \ **Category:** General\ **Created:** [February 29, 2012, 5:51am UTC](https://forum.chiarisupport.org/t/no-chiari-headaches/866 "2012-02-29T05:51:17Z")\ **Posts on this page:** 5\ **Page:** 1
**Author:** ![Bons](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.chiarisupport.org/bons/32/668_2.png) [@Bons](https://forum.chiarisupport.org/u/Bons)\ **Post date:** [February 29, 2012, 5:51am UTC](https://forum.chiarisupport.org/t/no-chiari-headaches/866/1 "2012-02-29T05:51:17Z")
I have been diagnosed with Chiari Type 1 accompanied by a large syrinx. I was shocked, to say the least, by the diagnosis. I had been experiencing pain in my shoulder blade region (sometimes stabbing, other times just a continuous ache), after a while I started with pains in my right arm, which lead to numbness. Over four months of visiting Physios and Chiropractors, XRays and a CT Scans (which gave no relief and revealed nothing), I was referred for an MRI, which led to my diagnosis. I have already seen my neurosurgeon and surgery has been scheduled for the 9 March. What I am asking is, if anyone else has been diagnosed with Chiari and has had these symptoms, without the dreaded headaches that I have read a lot of Chiari patients suffer from? Thanks, Bons. ---
**Author:** ![Bill\_Zern](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.chiarisupport.org/bill_zern/32/594_2.png) [@Bill\_Zern](https://forum.chiarisupport.org/u/Bill_Zern)\ **Post date:** [February 29, 2012, 6:13am UTC](https://forum.chiarisupport.org/t/no-chiari-headaches/866/2 "2012-02-29T06:13:25Z")
hi Bons, First off, congrats on the MRI findings! :) I mean that totally sucks but you found the problem and now you can fix it :) Headaches are very common but not everybody has them. Where is your syrinx? What type of surgery will they be doing? Are you confident in this neurosurgeon, like has he/she operated on many Chiari patients? A "Large" syrinx is really a big deal so I'm glad you were able to get surgery scheduled so soon. Take it easy until then! PS: the above questions are super important! ---
**Author:** ![Bons](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.chiarisupport.org/bons/32/668_2.png) [@Bons](https://forum.chiarisupport.org/u/Bons)\ **Post date:** [February 29, 2012, 6:33am UTC](https://forum.chiarisupport.org/t/no-chiari-headaches/866/3 "2012-02-29T06:33:59Z")
Hi Bill, I am quoting from the medical report "There is a large cervical cord syrinx which expands the cervical spinal cords and extends inferiorly to approximately T10 level". When I saw the surgeon, I asked him when last he had performed this operation. Coincidentally, he had operated on a patient that week and the patient was still in the hospital. He called down to ward and asked her if I would be able to come and see her. My husband and I spoke to her at length and she was in great spirits and looked great after such a big operation. I have another MRI with contrast scheduled for this Friday (2nd) and the operation scheduled for the 9th. Thanks for your reply and concern, Bons ---
**Author:** ![shalunya](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.chiarisupport.org/shalunya/32/11_2.png) [@shalunya](https://forum.chiarisupport.org/u/shalunya)\ **Post date:** [March 1, 2012, 11:13pm UTC](https://forum.chiarisupport.org/t/no-chiari-headaches/866/4 "2012-03-01T23:13:47Z")
Bons, I do have the headaches, but I am also a classic migraine sufferer on top of the Chiari. But I do suffer from chronic, debilitating muscle spasms across my shoulders. Sometimes, they restrict me from turning my head or lifting my arms overhead. I deal with weakness and numbness in both arms but my cervical spinal canal is only half the size of what it should be. Good Luck tomorrow with the MRI. And I will keep you in my prayers during your surgery. Hopefully, all will go smoothly and without incident. \<3 Renee ---
**Author:** ![OliveFace](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.chiarisupport.org/oliveface/32/681_2.png) [@OliveFace](https://forum.chiarisupport.org/u/OliveFace)\ **Post date:** [March 2, 2012, 7:31pm UTC](https://forum.chiarisupport.org/t/no-chiari-headaches/866/5 "2012-03-02T19:31:56Z")
Congrats! It is a relief to finally know what is happening to your body and that it can be treated! I had tons of symptoms including the pulsating headaches: nausea, dizziness, faintness, weight loss, tingling/numbness in my limbs,etc. It’s a very troubling condition but surgery really helps most of it. Good luck on March 9th! I send you and your family positive vibes 🙂 -Olivia