# New here...low lying cerebellar tonsils **URL:** \ **Category:** General\ **Created:** [April 14, 2012, 10:09pm UTC](https://forum.chiarisupport.org/t/new-here-low-lying-cerebellar-tonsils/1152 "2012-04-14T22:09:05Z")\ **Posts on this page:** 7\ **Page:** 1
**Author:** ![AFed07](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.chiarisupport.org/afed07/32/812_2.png) [@AFed07](https://forum.chiarisupport.org/u/AFed07)\ **Post date:** [April 14, 2012, 10:09pm UTC](https://forum.chiarisupport.org/t/new-here-low-lying-cerebellar-tonsils/1152/1 "2012-04-14T22:09:05Z")
Hi everyone...first I want to say thanks for the welcomes already from just coming here. I wanted to share some of my story, and hope that someone can help me out. A little background: I'm 25, college student, married mother of 2. I'm currently seeing a neurologist in Denver. I was actually referred to them because I get "attacks" where objects in my peripheral vision appear closer (strange, huh?). The neurologist ordered an EEG & MRI of the brain to "rule out" other conditions. He said that everything was normal, but I got a copy of my MRI results and it states that I have low lying cerebellar tonsils, but without evidence of a Chiari 1 malformation. I've been doing a lot of research, and from what I understand is that it's still considered Chiari, right? I know my neurologist will brush it off if I even bring it up to him. At my last follow up appointment, he prescribed me Propranolol to prevent migraines which landed me in the ER with chest pains so I stopped taking it. I was only on it for 3 days, so I don't know if it would have helped with the migraines had I been able to use it longer. All it did for me besides the chest pains was make me feel severely dizzy and weak. He also to take B-12 & Magnesium which I've been taking everyday for the past 2 weeks. My symptoms that I get: Headaches, mainly behind my right ear that feels like pressure Sometimes the headaches are in the back of my head, like I've been hit with a baseball bat...OUCH! Headaches pretty daily, especially after waking up in the morning, worse with laughing, etc Right eye pain/pressure Dizziness/vertigo Right arm often feels weak, like it's being weighed down Tingling in the right arm/hand Husband says sometimes I slur my words "Drunk feeling" (Mental fog) Do these symptoms seem like they would be from Chiari? I live in Denver, and I've researched Dr. Oro at the Chiari Care Center here, but I'm not even sure if I could get an appointment without having the "Chairi 1" Dx. Any help would be greatly appreciated. Thanks! :) ---
**Author:** ![mochico-M](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.chiarisupport.org/mochico-m/32/646_2.png) [@mochico-M](https://forum.chiarisupport.org/u/mochico-M)\ **Post date:** [April 14, 2012, 11:21pm UTC](https://forum.chiarisupport.org/t/new-here-low-lying-cerebellar-tonsils/1152/2 "2012-04-14T23:21:57Z")
Welcome! I too live in Denver…call Dr. Oro! Awesome man and surgeon. They’ll schedule you. Take all your films with you! Good luck! Monique ---
**Author:** ![Crystal2](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.chiarisupport.org/crystal2/32/436_2.png) [@Crystal2](https://forum.chiarisupport.org/u/Crystal2)\ **Post date:** [April 15, 2012, 12:27am UTC](https://forum.chiarisupport.org/t/new-here-low-lying-cerebellar-tonsils/1152/3 "2012-04-15T00:27:23Z")
You should definitely call Dr. Oro for an appointment! I have heard a lot of wonderful things about him…You’re lucky to live so close:) Please keep us posted:) ---
**Author:** ![Christisue](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.chiarisupport.org/christisue/32/802_2.png) [@Christisue](https://forum.chiarisupport.org/u/Christisue)\ **Post date:** [April 15, 2012, 3:16am UTC](https://forum.chiarisupport.org/t/new-here-low-lying-cerebellar-tonsils/1152/4 "2012-04-15T03:16:57Z")
I can't agree more - don't stop seeking help. Call and take the films. Don't give up on the meds either. I took that same medicine years ago and it worked for a while and then stopped. There are lots of medicines to try and this is just one. I hope to hear back after you get help!! :-) Praying for you! ---
**Author:** ![AFed07](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.chiarisupport.org/afed07/32/812_2.png) [@AFed07](https://forum.chiarisupport.org/u/AFed07)\ **Post date:** [April 15, 2012, 3:55am UTC](https://forum.chiarisupport.org/t/new-here-low-lying-cerebellar-tonsils/1152/5 "2012-04-15T03:55:22Z")
Thanks for the quick replies! I'll definitely call Monday and see what we can do. Does anyone know how long it usually takes to get in to see him? I have another follow up with my neuro on the 27th, is there any additional testing that maybe I could request to be done before hand that would be beneficial? ---
**Author:** ![Nicole2](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.chiarisupport.org/nicole2/32/725_2.png) [@Nicole2](https://forum.chiarisupport.org/u/Nicole2)\ **Post date:** [April 16, 2012, 12:08am UTC](https://forum.chiarisupport.org/t/new-here-low-lying-cerebellar-tonsils/1152/6 "2012-04-16T00:08:31Z")
Hi my daughter was diagnosed with Chiari she is 20, she was getting headaches and describes them like you do. We went to a neurologist and all they wanted to do is give her meds. I took her to a neurosurgeon at Beth Isreal in NYC and he suggested surgery so be prepared for that, but I would def. go to a neurosurgeon. Good Luck!! ---
**Author:** ![AFed07](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.chiarisupport.org/afed07/32/812_2.png) [@AFed07](https://forum.chiarisupport.org/u/AFed07)\ **Post date:** [April 17, 2012, 12:46am UTC](https://forum.chiarisupport.org/t/new-here-low-lying-cerebellar-tonsils/1152/7 "2012-04-17T00:46:12Z")
Thanks everyone. I called Dr. Oro's office today, and they told me to fax my MRI report and then they'll call to schedule me an appointment.