Negative help from the neurologist

Yeah, Abbielee, You didn’t need THAT doc! He wasn’t worth it. I found my Chiari doc by Googling “Chiari surgeons,” and fortunately, the closest one was only a 90 minute drive away - and all he did was Chiari decompression surgery. When your doc told you that you ‘only’ had a 6mm plug, immidiately my red flags went up. My neurosurgeon told me right off that the length of the hernia makes no difference in the severity of Chiari symptoms. A plug is a plug. In fact, he told me that in his career of Chiari patients, he had one patient with an inch-long plug whose only symptoms were little tingles in the fingertips. Meanwhile, another patient had a 1/2 mm plug, and she had to be rolled into his office in a wheelchair - she had become totally paralyzed. Mine was 'only 1mm." Not only that, but my cerebellum’s brain ooze wasn’t even coming out from the back - it was coming out the SIDES of my skull. Therefore, when I was required to get a 2nd opinion, the 2nd neurosurgeon in Charlotte wasn’t able to find any Chiari - because he didn’t even know to look for lateral brain ooze - only medial. I am forever grateful that Google landed me on the best Chiari neurosurgeon ever. (He’s retired himself, but has trained many others how to do decompressio surgery.) Keep being proactive and find the right CHAIRI qualified one!