# Memory

**URL:** <https://forum.chiarisupport.org/t/memory/4131>\
**Category:** General\
**Created:** [October 2, 2013, 2:39pm UTC](https://forum.chiarisupport.org/t/memory/4131 "2013-10-02T14:39:20Z")\
**Posts on this page:** 16\
**Page:** 1

<div class="post-metadata">

**Author:** ![Danielle1](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.chiarisupport.org/danielle1/32/1760_2.png) [@Danielle1](https://forum.chiarisupport.org/u/Danielle1)\
**Post date:** [October 2, 2013, 2:39pm UTC](https://forum.chiarisupport.org/t/memory/4131/1 "2013-10-02T14:39:20Z")

</div>

does anyone else have memory problems? like trouble remembering common words?

---

<div class="post-metadata">

**Author:** ![jcdemar](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.chiarisupport.org/jcdemar/32/1226_2.png) [@jcdemar](https://forum.chiarisupport.org/u/jcdemar)\
**Post date:** [October 2, 2013, 3:13pm UTC](https://forum.chiarisupport.org/t/memory/4131/2 "2013-10-02T15:13:49Z")

</div>

Yes, I have trouble with speaking and spelling. I know what I want to say in my head but have difficulty spitting it out.

---

<div class="post-metadata">

**Author:** ![Danielle1](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.chiarisupport.org/danielle1/32/1760_2.png) [@Danielle1](https://forum.chiarisupport.org/u/Danielle1)\
**Post date:** [October 2, 2013, 4:09pm UTC](https://forum.chiarisupport.org/t/memory/4131/3 "2013-10-02T16:09:37Z")

</div>

ugh. thank God I’m not alone!

---

<div class="post-metadata">

**Author:** ![Christy1975](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.chiarisupport.org/christy1975/32/2362_2.png) [@Christy1975](https://forum.chiarisupport.org/u/Christy1975)\
**Post date:** [October 2, 2013, 6:04pm UTC](https://forum.chiarisupport.org/t/memory/4131/4 "2013-10-02T18:04:17Z")

</div>

Yes. Probably my most frustrating symptom. I have heard that playing word games will help. I do crossword puzzles and words with friends as time allows. Not sure if it helps but better than doing nothing at all.....

---

<div class="post-metadata">

**Author:** ![Danielle1](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.chiarisupport.org/danielle1/32/1760_2.png) [@Danielle1](https://forum.chiarisupport.org/u/Danielle1)\
**Post date:** [October 2, 2013, 6:44pm UTC](https://forum.chiarisupport.org/t/memory/4131/5 "2013-10-02T18:44:09Z")

</div>

I’ll have to try words with friends and games like that!

---

<div class="post-metadata">

**Author:** ![Lyn727](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.chiarisupport.org/lyn727/32/1883_2.png) [@Lyn727](https://forum.chiarisupport.org/u/Lyn727)\
**Post date:** [October 2, 2013, 9:14pm UTC](https://forum.chiarisupport.org/t/memory/4131/6 "2013-10-02T21:14:29Z")

</div>

I have the same trouble. It is one of my most frustrating and sometimes embarrassing symptoms. It also has not gotten better but worse since decompression surgery. Sometimes, I feel like I'm getting dumber. :) I call it my "Chiari brain". I have tried to do "brain games" like Lumosity and also word puzzles, but I haven't seen a huge improvement.

---

<div class="post-metadata">

**Author:** ![Sonj](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.chiarisupport.org/sonj/32/2253_2.png) [@Sonj](https://forum.chiarisupport.org/u/Sonj)\
**Post date:** [October 2, 2013, 9:35pm UTC](https://forum.chiarisupport.org/t/memory/4131/7 "2013-10-02T21:35:45Z")

</div>

Hi. I have only been taking paracetamol, so have no strong drugs on board & my memory is shocking. But, as I was just informed, it has been getting worse & worse for the last two years leading up to diagnosis. I wonder iv we have some mood & concentration issues that could be similar among Chiari people, too. Cognitively I do really well, but there is something just a bit different in me. I was always teased at school because I would go into a trance like stare several times a day - just had surgery one week ago, so I will find out if I change. I had one recent episode of the concentration problem while out at lunch with a friend who got furious with me for not 'being there' for her because I had vague moment while she was speaking to me. I was so embarrassed!

---

<div class="post-metadata">

**Author:** ![frustrated](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.chiarisupport.org/frustrated/32/2082_2.png) [@frustrated](https://forum.chiarisupport.org/u/frustrated)\
**Post date:** [October 3, 2013, 12:49pm UTC](https://forum.chiarisupport.org/t/memory/4131/8 "2013-10-03T12:49:37Z")

</div>

What were we talking about again? LOL Yes, I have it often and quite badly!

---

<div class="post-metadata">

**Author:** ![Elisa\_H](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.chiarisupport.org/elisa_h/32/635_2.png) [@Elisa\_H](https://forum.chiarisupport.org/u/Elisa_H)\
**Post date:** [October 3, 2013, 2:50pm UTC](https://forum.chiarisupport.org/t/memory/4131/9 "2013-10-03T14:50:47Z")

</div>

Hello everyone ! I hope all of you are feeling good. I have not been here in a long time just because of my memory problems. I'm from Colombia and my first language is Spanish and I'm forgetting words I have known forever. When I try to speak in English, I don't do well and people don't understand what I'm saying. That's making me become more and more introverted and ashamed to speak with strangers.

---

<div class="post-metadata">

**Author:** ![jcdemar](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.chiarisupport.org/jcdemar/32/1226_2.png) [@jcdemar](https://forum.chiarisupport.org/u/jcdemar)\
**Post date:** [October 3, 2013, 3:50pm UTC](https://forum.chiarisupport.org/t/memory/4131/10 "2013-10-03T15:50:21Z")

</div>

Elisa- you have a double-whammy (sp?) please don’t feel shame, that just made me so sad.

  
  
Elisa Haywood said:

> Hello everyone ! I hope all of you are feeling good. I have not been here in a long time just because of my memory problems. I'm from Colombia and my first language is Spanish and I'm forgetting words I have known forever. When I try to speak in English, I don't do well and people don't understand what I'm saying. That's making me become more and more introverted and ashamed to speak with strangers.

---

<div class="post-metadata">

**Author:** ![LizS](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.chiarisupport.org/lizs/32/1648_2.png) [@LizS](https://forum.chiarisupport.org/u/LizS)\
**Post date:** [October 3, 2013, 3:58pm UTC](https://forum.chiarisupport.org/t/memory/4131/11 "2013-10-03T15:58:35Z")

</div>

Oh do I have that problem. I had a memory test done a few moths ago ...they didn't give me the result but it was comical.

Elisa I sympathize with your situation. I am from Kenya and can speak 3 languages so I mix my sentences up .

---

<div class="post-metadata">

**Author:** ![sunshine99](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.chiarisupport.org/sunshine99/32/1509_2.png) [@sunshine99](https://forum.chiarisupport.org/u/sunshine99)\
**Post date:** [October 3, 2013, 10:33pm UTC](https://forum.chiarisupport.org/t/memory/4131/12 "2013-10-03T22:33:45Z")

</div>

Most definitely yes!!! I'm not even sure if this reply is working because I can't remember how to do it in my kindle

---

<div class="post-metadata">

**Author:** ![TRod20](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.chiarisupport.org/trod20/32/2330_2.png) [@TRod20](https://forum.chiarisupport.org/u/TRod20)\
**Post date:** [October 4, 2013, 5:22pm UTC](https://forum.chiarisupport.org/t/memory/4131/13 "2013-10-04T17:22:44Z")

</div>

Yes, totally. And by the time the right word comes out, I forget what I was talking about.

---

<div class="post-metadata">

**Author:** ![TracyZ](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.chiarisupport.org/tracyz/32/609_2.png) [@TracyZ](https://forum.chiarisupport.org/u/TracyZ)\
**Post date:** [October 4, 2013, 5:47pm UTC](https://forum.chiarisupport.org/t/memory/4131/14 "2013-10-04T17:47:00Z")

</div>

All the time. It's very embarrassing at times when I am talking to people that don't know me and the stress makes it worse.

---

<div class="post-metadata">

**Author:** ![pebbles](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.chiarisupport.org/pebbles/32/2126_2.png) [@pebbles](https://forum.chiarisupport.org/u/pebbles)\
**Post date:** [October 6, 2013, 12:46am UTC](https://forum.chiarisupport.org/t/memory/4131/15 "2013-10-06T00:46:27Z")

</div>

Very common issue! Have you ever been checked for seizures? There are seizures, although I can't remember what they are called (lol), that can evoke a trance-like state where you can see, hear and feel what is going on but cannot respond.

---

<div class="post-metadata">

**Author:** ![Linny427](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.chiarisupport.org/linny427/32/648_2.png) [@Linny427](https://forum.chiarisupport.org/u/Linny427)\
**Post date:** [October 6, 2013, 12:50am UTC](https://forum.chiarisupport.org/t/memory/4131/16 "2013-10-06T00:50:25Z")

</div>

Yes for sure. I used to be SO good and now I just can't think of any words. I also can barely concentrate to even play games.
