# Just a question

**URL:** <https://forum.chiarisupport.org/t/just-a-question/5226>\
**Category:** General\
**Created:** [August 2, 2014, 5:35pm UTC](https://forum.chiarisupport.org/t/just-a-question/5226 "2014-08-02T17:35:28Z")\
**Posts on this page:** 3\
**Page:** 1

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**Author:** ![system](https://canada1.discourse-cdn.com/flex027/uploads/ben_chiari_community/original/2X/e/e30900c8db9e7859445c45df1a93b72099e1b777.png) [@system](https://forum.chiarisupport.org/u/system)\
**Post date:** [August 2, 2014, 5:35pm UTC](https://forum.chiarisupport.org/t/just-a-question/5226/1 "2014-08-02T17:35:28Z")

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do you tell your family and friends about your chiari?

if yes how do you tell them?

so far I have been keeping it very private but depending on what the ns says in sept.

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**Author:** ![Cole](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.chiarisupport.org/cole/32/2877_2.png) [@Cole](https://forum.chiarisupport.org/u/Cole)\
**Post date:** [August 3, 2014, 4:30am UTC](https://forum.chiarisupport.org/t/just-a-question/5226/2 "2014-08-03T04:30:13Z")

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What I have noticed with many of my friends, is that they are concerned about asking because they do not know if I am okay to talk about it.

I am very willing to talk about it because I feel Chiari Malformation needs all the help it can get about getting the word out. I am very open about what I have and then they usually will ask what Chiari is exactly and I'll answer. Typically one thing leads to another and other questions area asked. '

With this diagnosis, I believe part of my purpose in this life is to help spread the word about Chiari Malformation.

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**Author:** ![new2net98](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.chiarisupport.org/new2net98/32/2893_2.png) [@new2net98](https://forum.chiarisupport.org/u/new2net98)\
**Post date:** [August 4, 2014, 1:59am UTC](https://forum.chiarisupport.org/t/just-a-question/5226/3 "2014-08-04T01:59:05Z")

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Right now, I'm in the learning stage of finding out as much as I can. My dad & brother have the same links I do & my boss has been told that we have a dx but not the details of it. The rest of everyone is still in the dark; mostly because I still haven't wrapped my head around the whole "surgery is the only fix" deal yet. It's a personal choice. If you are comfortable with talking about it...do it & I suppose it's a comprehensive choice, depending on the audience. Not much help, I'm afraid, but I do wish you luck!