# Im in with Chiari Institute

**URL:** <https://forum.chiarisupport.org/t/im-in-with-chiari-institute/331>\
**Category:** What's New With You?\
**Created:** [July 25, 2011, 6:16pm UTC](https://forum.chiarisupport.org/t/im-in-with-chiari-institute/331 "2011-07-25T18:16:50Z")\
**Posts on this page:** 5\
**Page:** 1

<div class="post-metadata">

**Author:** ![Sandy](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.chiarisupport.org/sandy/32/238_2.png) [@Sandy](https://forum.chiarisupport.org/u/Sandy)\
**Post date:** [July 25, 2011, 6:16pm UTC](https://forum.chiarisupport.org/t/im-in-with-chiari-institute/331/1 "2011-07-25T18:16:50Z")

</div>

Hi all! Well I heard back from The Chiari Institute and after a very long painful weekend in bed they said they want to see me! I can’t even explain the relief I feel right now.  
After going from specialist after specialist. The denial that I’ve had inside that anything could be wrong since I’ve already had a surgery for Chiari coming up on 10 years now.  
This discussion group has been a GODSEND as it has helped me to find our a wealth of information and now I am led to the proper doctors for condition.  
It sometimes doesn’t just end with a surgery I’m finding out bit I’m so happy that I am on my way to the next step to a BETTER ME!!!  
woo hoo! I have no idea what I’m in for when I go there… But I’m so ready to stop the pain!  
Thank you all and I wish you a pain free day!!!  
Xoxo

---

<div class="post-metadata">

**Author:** ![Alicia\_R](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.chiarisupport.org/alicia_r/32/114_2.png) [@Alicia\_R](https://forum.chiarisupport.org/u/Alicia_R)\
**Post date:** [July 25, 2011, 7:59pm UTC](https://forum.chiarisupport.org/t/im-in-with-chiari-institute/331/2 "2011-07-25T19:59:00Z")

</div>

Sandy thats great news!! I'm glad you are on your way!

Hope you're having a pain free day:)

-Alicia

---

<div class="post-metadata">

**Author:** ![misallen](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.chiarisupport.org/misallen/32/200_2.png) [@misallen](https://forum.chiarisupport.org/u/misallen)\
**Post date:** [July 27, 2011, 7:02pm UTC](https://forum.chiarisupport.org/t/im-in-with-chiari-institute/331/3 "2011-07-27T19:02:03Z")

</div>

That’s fantastic news! I am waiting to hear from them myself! Keeping my fingers crossed! Good luck to you!

---

<div class="post-metadata">

**Author:** ![lori](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.chiarisupport.org/lori/32/65_2.png) [@lori](https://forum.chiarisupport.org/u/lori)\
**Post date:** [July 27, 2011, 11:43pm UTC](https://forum.chiarisupport.org/t/im-in-with-chiari-institute/331/4 "2011-07-27T23:43:11Z")

</div>

Oh Sandy...I am so happy that you will be seen there..hope you are feeling better.

when do you go????

Lori

---

<div class="post-metadata">

**Author:** ![Sandy](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.chiarisupport.org/sandy/32/238_2.png) [@Sandy](https://forum.chiarisupport.org/u/Sandy)\
**Post date:** [July 28, 2011, 3:24am UTC](https://forum.chiarisupport.org/t/im-in-with-chiari-institute/331/5 "2011-07-28T03:24:30Z")

</div>

Hi Lori

I go on September 21st. First day available that I can see Neurologist Dr. Kula (sp?)  
and Neurosurgeon Dr. Rekate.  
A whole 2 hours with neurologist and 1 hour w NS. I can’t imagine what it will be like to spend that amount of time with anyone that knows what we are all experiencing.  
I had a slight moment of panic that I will get there and they will have no answers for me after so  
Many years of this - but I can’t believe they would have me go all the way to NY without good reason after reviewing my MRIs. Just habit.  
Whew!! Can’t wait!!!  
Sandy
