I ended up back in the ER (Sacred Heart) today with a really severe migraine. The nurse came in did his thing and so did the ER doctor. They called my neurologist (nothing new there) and my neurologist suggested having a combination of the medications that they give me in the ER as an inject able cocktail that I can "check out" from his office on a one vial basis and return the empty ones with an effectiveness report for him to keep in my records. From what he said, it would be a kit with the medication AND the syringes that would be needed to do the injections and it would all be returned before I could check out another one. He even brought up changing the pain management agreement so that I could do the injections under the observation of an RN at the local hospital if needed.
The cocktail they are talking about is Decadron, Dilotted, DHE, Benadryl and promethazine pre mixed for either 1 or 2 injections as well as training my other half on how to give them. He said it was completely up to me but last time I checked, Dilotted could only be used in a clinical setting.
My big question is should I go for it or tell my neurologist that I feel more comfortable in having the injections done in the ER or office.
Here are some details that Beeba pointed out that I hadn't included before. I have tried all triptan medications, my body has become resistant to hydro-codone and oxycoton. Vicodin is also out of the question because of a resistance problem with it. Fiorcet is also out of the question because last time I took it I ended up having uncontrolled bleeding issues and frequent bloody noses that would go for hours. I am currently in the final steps before surgery, should be having it done in July or August of this year if everything keeps going. The doctor is also someone I trust, he did a lumbar decompression, lamanectomy, and fusion on my mom back in 1995 and she hasn't had any problems with her lower back since; he has also now reached out to Chiari procedures.
The medication cocktail is only going to be available as a last resort; meaning I have to try all other options including over the counter and oral rescue meds that I already have. It would also have a max of 2 doses a month and they have to be at least 10 days apart before he'll authorize them being given.
Does anyone have any ideas that I could bring up to my neurologist since he is now also working as my pain management doctor when it comes to my migraines? I could really use some suggestions.
Thanks in advance!