WHAAAT???I have been through somany horrible episodes of sudden extreme sweating the overwhelming feeling of faint/nausea. It was ruining my life. This was way before my chiari diagnosis. I had many tests done. the doctor who did the tolt table test told me I had a low heart rate & needed a pace maker. The cardiologist said i did not. I wonder if it is POTS. If it is, is there anything that can be done about it or do you just live with knowing what it is? I dont want to go through all the tests again if there is no treatment. Does anyone know??? INFO PLEASE!! thanx
By the way, when I got the tilt table test, they were specifically looking for myocardiosyncopy, which 4 doctors looked at the results, & said i had it & 2 said I did not, I gave up on doctors for years after that, but I am sure they had tunnel vision, & were not looking for anything else
The correct Medications is the key. My son has had this for years since age 3-4 although only diagnosed in the last year he is 10 almost 11. The medications have helped tons. Also being aware. Dehydration is the enemy. So pushing fluids is key. Also we get the lots of salt diet. Wearing compression socks or stockings helps too. Keep stress to a minimum. get on the right meds. Try to get to a dysautonomia specialist or a EP cardiologist that has experience with chiari. We are truly a special breed. Royce Bailey in Hendersonville NC. Blair Grubb in Ohio, The dysautonomia clinic at Vanderbuilt.
Good luck