# Eds **URL:** \ **Category:** General\ **Created:** [January 11, 2015, 9:42pm UTC](https://forum.chiarisupport.org/t/eds/5679 "2015-01-11T21:42:01Z")\ **Posts on this page:** 5\ **Page:** 1
**Author:** ![Brittec44](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.chiarisupport.org/brittec44/32/3119_2.png) [@Brittec44](https://forum.chiarisupport.org/u/Brittec44)\ **Post date:** [January 11, 2015, 9:42pm UTC](https://forum.chiarisupport.org/t/eds/5679/1 "2015-01-11T21:42:01Z")
Hi guys! I was diagnosed with Chiari Malformation 3 months ago was both relieved (because I had an answer for my symptoms) and scared. I've recently been introduced to the idea that EDS could be causing my Chiari. I didn't know anything about EDS before being diagnosed, but upon reading the symptoms I was startled by how much this sounded like me. The physical descriptions: long nose, long feet, small teeth, small upper lip, and prominent veins around my eyes, chest, abdominals, etc and very thin skin. I haven't noticed much hyper mobility but my wrist is small and I can bend it further down than most people, but that's about it to my knowledge. I don't know how to go about getting tested or how this might affect Chiari Surgery. I related the most to the vascular EDS one which scares me because it is also the most dangerous. Any information would be wonderful! I am so thankful for this site. -Brittany ---
**Author:** ![Desron1](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.chiarisupport.org/desron1/32/3127_2.png) [@Desron1](https://forum.chiarisupport.org/u/Desron1)\ **Post date:** [January 11, 2015, 9:57pm UTC](https://forum.chiarisupport.org/t/eds/5679/2 "2015-01-11T21:57:41Z")
Hi. I am also new. I was diagnosed and had surgery relatively quickly. Do you have a surgery date yet? ---
**Author:** ![jcdemar](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.chiarisupport.org/jcdemar/32/1226_2.png) [@jcdemar](https://forum.chiarisupport.org/u/jcdemar)\ **Post date:** [January 12, 2015, 3:55pm UTC](https://forum.chiarisupport.org/t/eds/5679/3 "2015-01-12T15:55:09Z")
Britt, a rheumatologist can diagnose EDS. It’s important to be aware of EDS because of the other issues it causes. People with EDS have lax and stretchy soft tissue, including the ligaments that make our joints stable. When the ligaments fail to keep the joints of your spine, and specifically your cranial cervical joint, stable your spinal cord, medulla and brain stem get stretched, elongated, and kinked when your head moves. Cranio cervical instability requires a cranio cervical fusion. The symptoms of CCI mimic Chiari. Jenn 🙂 ---
**Author:** ![Brittec44](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.chiarisupport.org/brittec44/32/3119_2.png) [@Brittec44](https://forum.chiarisupport.org/u/Brittec44)\ **Post date:** [January 16, 2015, 9:12pm UTC](https://forum.chiarisupport.org/t/eds/5679/4 "2015-01-16T21:12:15Z")
No, I have a date to speak with my neurosurgeon though on February 10. How are you feeling after your surgery? Desron1 said: > Hi. I am also new. I was diagnosed and had surgery relatively quickly. Do you have a surgery date yet? ---
**Author:** ![Brittec44](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.chiarisupport.org/brittec44/32/3119_2.png) [@Brittec44](https://forum.chiarisupport.org/u/Brittec44)\ **Post date:** [January 16, 2015, 9:17pm UTC](https://forum.chiarisupport.org/t/eds/5679/5 "2015-01-16T21:17:01Z")
Thank you for all the information! I was thinking of the minimally invasive surgery but I'm worried about scar tissue forming and blocking the flow of spinal fluid. Perhaps taking Vitamin C would help prevent this issue while I'm recovering? I am so uncertain about what to do. jcdemar said: > Britt, a rheumatologist can diagnose EDS. It's important to be aware of EDS because of the other issues it causes. People with EDS have lax and stretchy soft tissue, including the ligaments that make our joints stable. When the ligaments fail to keep the joints of your spine, and specifically your cranial cervical joint, stable your spinal cord, medulla and brain stem get stretched, elongated, and kinked when your head moves. Cranio cervical instability requires a cranio cervical fusion. The symptoms of CCI mimic Chiari. > > Jenn :)