I’m so incredibly agitated!!! Who has had to deal with people insinuating that having a decompression surgery is unnecessary??? My boss and her wife at work are really ticking me off. The only reason they even care is because it’ll effect their home life because they wouldn’t have me working all the crap shifts so one of them will have to. I get the passive comments “well i would find an alternative. I wouldn’t let anyone cut into my head”. Its infuriating because they are not the ones living with constant headaches and pain. I just had to vent a little. I feel better now :-). I do fully intend on quiting after the surgery. I can’t stand the negativity!!!
Good - glad u r quitting ... my brother thought that I was crazy for having the surgery too. He radically changed his mind when he came to visit 2 weeks post-op and saw how much better I already was! Don't give your power away to these folks. There is no way that they can understand why you would go through with this because they are incapable of empathy. Just put your Star Trek "shields up" when you have to see them between now and the surgery - don't let anything they say get in to your emotional world ... you are going through enough already. Wishing you deep peace and healing, Fr. D
I am so sorry you are having to work in this environment. I Love Fr. D. He gives incredible advice !!! There is a great video I will post if I can find it about "giving your power or joy away." It is a Christian video, that I personally found incredibly interesting. I am going to post it for it's message about personal power, whatever you get or leave is your business.
I am really bad about letting others bad attitudes and comments affect my life. Chiari is difficult enough on it's own. I also had to cut toxic people out of my life. I couldn't live with the negativity and hurt feelings. Have you ever done breathing exercises? I have my whole life because I play a musical instrument but also learned the stress relieving benefit from a pain mgmt. psychologist.
Don't Give Away Your Joy by Joel Osteen- Again this is just a great message I am not pushing one religion over another or none.
http://www.youtube.com/watch?v=Z3xYMpZk9iE
Breathing exercises:
http://www.youtube.com/watch?v=Apkg1cKDyyA
http://www.youtube.com/watch?v=-udFE6TaZT4
Please don't send me any hate messages because I posted a religious video. It has a great message. That's all. My only motivation. I wouldn't care what religion it is. To me there is only one God. Religions are just different flavors and made by man. Again my opinion and I better shut up before I dig deeper. Just please try and understand. I Love everyone. Just a Great Video !!!
Thanks,
Tracy
WOW! how incredibly insensitive of your boss! I feel for you. Maybe you should not discuss it with them anymore, & if they bring it up, maybe let them politley know that you dont feel comfortable talking to them about it. Just what you need on top of everything else you are dealing with. Good luck
Great post! Love Joel Osteen!
Negativity is created by ignorance of not realizing that there are greater forces at work in our lives.
I have a similar problem, not with work but with my family. I have to hear from an Aunt that my sister and brothers are concerned about me. Do they reach out to me and offer comfort or assistance? NO. I feel isolated and abandoned. I just get the feeling that they (my family) don't believe that I'm really sick. That's the problem with this damn disorder, everything can look good on the outside...
Take care!
TracyZ said:
I am so sorry you are having to work in this environment. I Love Fr. D. He gives incredible advice !!! There is a great video I will post if I can find it about "giving your power or joy away." It is a Christian video, that I personally found incredibly interesting. I am going to post it for it's message about personal power, whatever you get or leave is your business.
I am really bad about letting others bad attitudes and comments affect my life. Chiari is difficult enough on it's own. I also had to cut toxic people out of my life. I couldn't live with the negativity and hurt feelings. Have you ever done breathing exercises? I have my whole life because I play a musical instrument but also learned the stress relieving benefit from a pain mgmt. psychologist.
Don't Give Away Your Joy by Joel Osteen- Again this is just a great message I am not pushing one religion over another or none.
http://www.youtube.com/watch?v=Z3xYMpZk9iE
Breathing exercises:
http://www.youtube.com/watch?v=Apkg1cKDyyA
http://www.youtube.com/watch?v=-udFE6TaZT4
Please don't send me any hate messages because I posted a religious video. It has a great message. That's all. My only motivation. I wouldn't care what religion it is. To me there is only one God. Religions are just different flavors and made by man. Again my opinion and I better shut up before I dig deeper. Just please try and understand. I Love everyone. Just a Great Video !!!
Thanks,
Tracy
Thanks everyone!!! I appreciate the support!!
Fortunately everyone on my life was extremely supportive. Ppl that don’t share our pain can’t relate but there is no reason to be a jerk about it. Of course I had ppl who stated that they would be afraid to have someone cut into their brain but they weren’t saying it to be discouraging, they said it out of concern. There is a difference! You don’t need ANYONE stressing you out, it’s scary enough having to know that you need any kind of surgery. Keep away from the nay sayers! If you feel like quitting you job will give you that piece of mind that you will desperately need…good food you! But I’d say don’t do it until you have found areplaceme job and after your surgery so that you can still have your insurance. If you are married and are carried on yours spouses insurance…I’d say quit sooner rather then later. You need ALL OF YOUR STRENGTH to get thru this so you need to be in a good head space, bad enough having to deal with the agonizing headaches and other pain, you don’t need a pain in your ass too! I wish you well. When will you go in for surgery?
The smart a$$ in me would respond “Oh, when did you become an expert on Chiari Malformations and its symptoms.” The more effective response however, is something along the lines of “We all have to make decisions about our health and I have made mine. I need support, not criticism so it’s probably best if we don’t discuss this in the future.”
Sorry you have to deal with this!
I’m so over people like this… So many people told me it was stress or anxiety etc. I am one of the most laid back people I know. I don’t even judge people outside of extreme intended violence. I’ve always been baffled by their insistence that my “condition” was fictional. Even my “expert and renowned” Internist told me that chiari only messed with your gait or balance never headaches, couldn’t possibly be my problem… A good friend believed that it was stress causing me to invent something to mask other subconcious issues from my past, that is until he saw the 21 stitches down the back of my skull after the surgery. I find the scar tends to shut people up real quick. I’m pretty sure we have all been there to some degree extreme to mild in regards to the doubters. What YOU have to do is remember that You are not the crazy one THEY are. I know it is hard to not let it hurt. Just imagine how awful (or stupid in some cases) they will feel when they realize how wrong they were. Hold your head up high and ignore the a**holes and smile inside at their ignorance. You know better than they do and YOU are taking steps to make your life much better than ever before. They are simply ignorant or mean or selfish which is actually quite sad when you think about it. I hope you feel better soon. My decompression surgery (3.5 weeks ago) has made a world of difference already. I can’t wait to see my 3 month cine and reg MRI! Stay strong and good luck!
N Richardson...so glad you vented in this arena - safe and truly understanding. There by he grace of God your employers have their health....I wish you the best for surgery...what a change you will feel when your brain fully receives oxygen :) . The very best to you.
Lol i had to quiet my inner smarta$$ 
Kim Sk said:
The smart a$$ in me would respond "Oh, when did you become an expert on Chiari Malformations and its symptoms." The more effective response however, is something along the lines of "We all have to make decisions about our health and I have made mine. I need support, not criticism so it's probably best if we don't discuss this in the future."
Sorry you have to deal with this!
I do know what you’re saying,my chiari went 27+ yrs.with all kinds of Dr.s being so baffled by this.It was a nightmare to live in,it is usually concidered by everybody to be a mental problem,the cause of the problem is them not knowing what is going on.I’ve been made out to be a babbling fool,just a depressed,weak,just down right crazy nut.They still can’t be told anything,I revisited the last NL I had seen before I found a specialist who could help,to follow up on what had happened,it peed him off for anyone to have the nerve to tell him he was wrong.In my oppinion every former Dr.needs to get a report from the surgeon who knew what to do,maybe if we do this they might start to believe us when we tell them the hell we have to endure because they don’t go on symptoms.There does not have to be a herniation for this disorder to greatly effect our lives,I’m truth of that fact!!