I also have tremors on my right side only. (right hand, neck, & face) While doing some neurological testing, we discovered that it is triggered by hyperventilation. I just learned that I have Chiari and I'm waiting for my appointment with the NS regarding the status of my Chiari and, of course....the plan.
I’m not sure what was going on yesterday. I did more than usual and I had my usual St. Pepper breakfast. I know not the wisest. My right arm kept going numb while driving and my arms wouldn’t stop shaking. I don’t know if it was the caffeine or the fact that I hadn’t eaten all day. I slept miserably last night and just didn’t feel well.
Sarah
I feel that I am very blessed to not have the tremors as of yet but have dealt with my own fair share of pain and symptoms. I just wanted to share that I have recently taken another chiarians great advice and tried Dr. Weils anti inflammatory diet and just with taking the supplements alone I have had major relief!!! Since starting on a long list of anti inflammatory suggested supplements I haven't had to take NOT ONE prescription pill for pain or inflammation in almost 2 weeks. I hope that this helps atleast one of you guys get a little relief as it did for me.
I have left arm tremors as one of my symptoms. However i am 6 weeks after surgery and still have some tremors and other symptoms as well. Good luck to you!!
That’s great Shannon! I’m glad you found something that works for you. I feel the same as yesterday. Legs feel like they are going to cramp up arms are shaky and have no strength in them and to round it all off I’m trying to fend off a massive anxiety attack. Took the kids to a new Dentist who used to live in Boston. He had a friend who had surgery with positive results. Why is it that I always feel like I live on the wrong side of the Us?
Sarah
Sounds like it’s time for a new doctor! I struggle with Doctors here in Wa state. They automatically say no Chiari Malformation on the MRI even when they say there is. It’s crazy! Check out recommended doctors on the site and go somewhere else! I can’t remember if I commented here before. I really miss my brain. I too had my symptoms worsen these last few months and I don’t know why? It started back in October and hasn’t ever stopped. New symptoms sometimes daily. I’ve said this before too, you know your body better than anyone. If it doesn’t feel right then it probably isn’t. Go somewhere where they listen and treat you with the respect you deserve. If I’ve already said all this just disregard. 
I’m sure you know what I mean by saying it’s been one of those days!
Sarah
I also have the tremors. The shakes get so bad in the morning that sometimes I cant hold my coffee cup. I also shake real bad when I get tired. I also have a lot of the same symptoms, but my NS seems to thinik they are caused by other things. He tested me for carpal tunnel, and while I have it moderately in my right wrist, it doesnt account for the shaking. He also said shaking/tremors had nothing do do with Chiari, but it seems more and more people have told me they too have that symptom. I would suggest you get another opinion...thankfully my Neurologist seems to take me seriously. I get the feeling, that while my NS has done many decompression surgeries, that he feels I am simply a complainer.
HI TracyZ....I tried the link and it didnt work. Is there any way you could send it to me in a message? I would be very interested in checking it out. Thanks so much!
TracyZ said:
Hi S Mozer,
I have had and still have many of your same symptoms. Is it possible for you to get a second opinion? You should be getting straight answers from your Dr. I would also read about Postural Orthostatic Tachycardia POTS). I was just diagnosed in December and Many Chiarians also has POTS. Kaiser has some good NS's. Send me a message and tell me what city and state you are in and I will send you a list of Chiari experienced NS that participate with Kaiser. Plus let me know what kind of policy you have HMO, PPO, EPO. We have the most complete list of symptoms I have found anywhere. I will look for it and link it to this post. Found It !!!
FileNotFound*xnmJQ*aICiCwpkhOY6d/symptomslistchiari.htm
_ _ _ _Tracy Z.
Myinerchld said:
HI TracyZ....I tried the link and it didnt work. Is there any way you could send it to me in a message? I would be very interested in checking it out. Thanks so much!
TracyZ said:__Hi S Mozer,
I have had and still have many of your same symptoms. Is it possible for you to get a second opinion? You should be getting straight answers from your Dr. I would also read about Postural Orthostatic Tachycardia POTS). I was just diagnosed in December and Many Chiarians also has POTS. Kaiser has some good NS's. Send me a message and tell me what city and state you are in and I will send you a list of Chiari experienced NS that participate with Kaiser. Plus let me know what kind of policy you have HMO, PPO, EPO. We have the most complete list of symptoms I have found anywhere. I will look for it and link it to this post. Found It !!!
FileNotFound*xnmJQ*aICiCwpkhOY6d/symptomslistchiari.htm
___ ___ ___ ___Tracy Z.
_
mamabear said:
Myinerchld said:__HI TracyZ....I tried the link and it didnt work. Is there any way you could send it to me in a message? I would be very interested in checking it out. Thanks so much!
TracyZ said:_____Hi S Mozer,
I have had and still have many of your same symptoms. Is it possible for you to get a second opinion? You should be getting straight answers from your Dr. I would also read about Postural Orthostatic Tachycardia POTS). I was just diagnosed in December and Many Chiarians also has POTS. Kaiser has some good NS's. Send me a message and tell me what city and state you are in and I will send you a list of Chiari experienced NS that participate with Kaiser. Plus let me know what kind of policy you have HMO, PPO, EPO. We have the most complete list of symptoms I have found anywhere. I will look for it and link it to this post. Found It !!!
FileNotFound*xnmJQ*aICiCwpkhOY6d/symptomslistchiari.htm
_____ _____ _____ _____Tracy Z.
__
Rachel said:
I hve all of the above symptoms with a 14mm destintion, tremors are true & real. I wish you all the best! The doctors today have very little knowledge of Chiari. If only they could walk in our shoes for 1 day, maybe then, they would understand. It is so sad, the pain we all go thru!
Back on June 25, 2012 I had asked the same questiion. In Nov. of 2011 I had the surgery for a Chiari Type 1. In December I started having blackouts then in January the Tremors started. I've suffered with upperbody Tremors which was diagnosed as Rubral Tremors. Now I have to have a Deep Brain Stimulation done next
Month. I which I feel robbed. You are right Drs. need to know more.
I am so sory that it is not only me. How long have you had yours and did it start after you surgery.
Myinerchld said:
I also have the tremors. The shakes get so bad in the morning that sometimes I cant hold my coffee cup. I also shake real bad when I get tired. I also have a lot of the same symptoms, but my NS seems to thinik they are caused by other things. He tested me for carpal tunnel, and while I have it moderately in my right wrist, it doesnt account for the shaking. He also said shaking/tremors had nothing do do with Chiari, but it seems more and more people have told me they too have that symptom. I would suggest you get another opinion...thankfully my Neurologist seems to take me seriously. I get the feeling, that while my NS has done many decompression surgeries, that he feels I am simply a complainer.
ed65166 said:
I am so sory that it is not only me. How long have you had yours and did it start after you surgery.
Myinerchld said:I also have the tremors. The shakes get so bad in the morning that sometimes I cant hold my coffee cup. I also shake real bad when I get tired. I also have a lot of the same symptoms, but my NS seems to thinik they are caused by other things. He tested me for carpal tunnel, and while I have it moderately in my right wrist, it doesnt account for the shaking. He also said shaking/tremors had nothing do do with Chiari, but it seems more and more people have told me they too have that symptom. I would suggest you get another opinion...thankfully my Neurologist seems to take me seriously. I get the feeling, that while my NS has done many decompression surgeries, that he feels I am simply a complainer.
Sounds like you got some good answers above as far as being able to find a Kaiser NS. I hope that will help you. I can tell you that I have had most of the symptoms you have had as well. I never had the headaches which is known as the primary symptom but i have had facial and left side weekness, back pain, facial ticks, irregular heartbeat as well as about 50 more symptoms I can't think of at the moment. Chiari is neurological. The brain controls EVERYTHING in the body. If anyone says that Chiari can not cause a symptom they are full of shit. ANYTHING wrong with your body can be caused by Chiari because the brain is controlling the body. My thyroid issues are cause by Chiari, the irregular heartbeat... all of it. I had surgery 6 months ago after 20 yrs of being misdiagnosed (when I went to Kaiser they were the worst wanting to diagnose me with MS). I finally diagnosed myself from watching mystery diagnosis and went to my neuro who took another look at my MRI and agreed. When I had surgery we had no idea how bad my heart was. They were concerned my heart would stop during surgery. Thankfully it didn't and as soon as surgery was complete my heart was back to a normal rythym. Please keep pushing to get something done. It is obvious what you have and your symptoms will keep to progress unless something is done. I have permanent nerve damage now because of how many years i have had symptoms. Also when they went in to do my surgery they found that my cerebellar tonsils were actually tethered so they had to remove the tethering so they could cut them down and increase CSF flow. They didn't know that until they got in there. Maybe the same with you. Just because they see something on a test does not mean that is the case when they get in. Sorry for writing a book here. Good luck.
I had horrible leg tremors. I was told by ER doc that he didn’t think it was chiari, but I researched and found it can be from brain stem compression. As patients we have to educate sone docs on this, you need to keep searching for a true chiari specialisy. Good luck to you.