With the comments about loss of range of motion in the neck, it really scares me as that has always been my primary problem. In fact, when I was born, they diagnosed my problem as congenital torticollis and now are pretty sure it was related to the chiari.
Diana Michelle Bradley said:
I have had Chiari since I was born but the drs didn't diagnosis me with it till I was in my 20s I'm in my 30s now. I have not had the surgery done. I make it day to day with my meds, exercise, knowing my limits, and eating healthy. I feel as long as I can control it with what I am doing there is no need for surgery, but if it was to get worse I would have it done. I help that kinda helps. Michelle
I was born with torticollis as well. Mom said my dad had to help with my neck exercises because she was too scared of breaking my neck! I wonder if there is a correlation to chiari?
That's exactly what my mom said as well....she made my dad come home from work to do the PT because she was afraid and I screamed so bad! The doctors said there wasn't a study about the relation so far, but they felt it was related. I also was diagnosed with early onset severe osteoporosis...there is an old study about kids with chiari and rickets, and I think there's a link to that too. I still have a Vitamin D deficiency...even after taking a prescription dose.
Anglyn said:
I was born with torticollis as well. Mom said my dad had to help with my neck exercises because she was too scared of breaking my neck! I wonder if there is a correlation to chiari?
Congratulations Patti for making a desicion! Put all the positive energy you have towards a good outcome, eat healthy, stay active & follow doctors orders
