# Chiari but cine MRI negative **URL:** \ **Category:** General\ **Created:** [November 6, 2013, 11:05pm UTC](https://forum.chiarisupport.org/t/chiari-but-cine-mri-negative/4306 "2013-11-06T23:05:16Z")\ **Posts on this page:** 7\ **Page:** 1
**Author:** ![dazybigred](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.chiarisupport.org/dazybigred/32/2514_2.png) [@dazybigred](https://forum.chiarisupport.org/u/dazybigred)\ **Post date:** [November 6, 2013, 11:05pm UTC](https://forum.chiarisupport.org/t/chiari-but-cine-mri-negative/4306/1 "2013-11-06T23:05:16Z")
After many months of intense tingling and pain in my arms and legs, an MRI revealed a chiari malformation. My neurosurgeon said that it was less than 5 mm, but that it was probably blocking the flow of csf, but before doing surgery he wants to do a cineMRI. As crazy as it sounds, I’m terrified that the MRI will come back fine and then I’m left without a diagnosis. I’m a lawyer at a big ny firm with two small kids and I’m very nearly disabled with my current symptoms and need a solutions. Has anyone had a malformation, symptoms, but a negative cine MRI? ---
**Author:** ![Patchoulimama](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.chiarisupport.org/patchoulimama/32/2051_2.png) [@Patchoulimama](https://forum.chiarisupport.org/u/Patchoulimama)\ **Post date:** [November 7, 2013, 1:47am UTC](https://forum.chiarisupport.org/t/chiari-but-cine-mri-negative/4306/2 "2013-11-07T01:47:38Z")
I felt the same way about getting a CINE mri. I was so worried it was going to come out normal. The doctor who ordered it was not a chiari specialist but he knew enough to order the MRI. The radiologist said there was no crowding and no blockage. I was devastated because I felt I was back at square one. When I finally saw a chiari specialist he told me that his radiologist would never say my flow was normal. He showed me how the crowding was severely blocking my flow. The other doctor was a good NS but he was not well versed with the many presentations of chiari. I had surgery at the end of August and am doing better than I have in years. Even after surgery I was still worried that chiari wasn’t causing my symptoms but I am so happy to report that most of my symptoms are gone completely so clearly the surgery was needed 🙂 ---
**Author:** ![Patchoulimama](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.chiarisupport.org/patchoulimama/32/2051_2.png) [@Patchoulimama](https://forum.chiarisupport.org/u/Patchoulimama)\ **Post date:** [November 7, 2013, 1:51am UTC](https://forum.chiarisupport.org/t/chiari-but-cine-mri-negative/4306/3 "2013-11-07T01:51:38Z")
So one radiologist and NS said mine was negative so surgery wasn’t needed. A specialist said they were wrong and I did need surgery. Maybe if yours is negative you could send your films to TCI for a second opinion. Keep us posted and don’t give up 🙂 ---
**Author:** ![dazybigred](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.chiarisupport.org/dazybigred/32/2514_2.png) [@dazybigred](https://forum.chiarisupport.org/u/dazybigred)\ **Post date:** [November 7, 2013, 1:53am UTC](https://forum.chiarisupport.org/t/chiari-but-cine-mri-negative/4306/4 "2013-11-07T01:53:05Z")
Thanks so much to both if you. I’m just praying this is the answer. I’m getting worse each week. It’s just unbelievable to me that this has progressed so quickly. ---
**Author:** ![dazybigred](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.chiarisupport.org/dazybigred/32/2514_2.png) [@dazybigred](https://forum.chiarisupport.org/u/dazybigred)\ **Post date:** [November 7, 2013, 2:03am UTC](https://forum.chiarisupport.org/t/chiari-but-cine-mri-negative/4306/5 "2013-11-07T02:03:25Z")
Thanks again. I’m seeing Dr. Souweidane at Weill Cornell, who I think is pretty good. We’ll see what he says. TCI would be my next stop, if needed. ---
**Author:** ![Patchoulimama](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.chiarisupport.org/patchoulimama/32/2051_2.png) [@Patchoulimama](https://forum.chiarisupport.org/u/Patchoulimama)\ **Post date:** [November 7, 2013, 2:30am UTC](https://forum.chiarisupport.org/t/chiari-but-cine-mri-negative/4306/6 "2013-11-07T02:30:55Z")
It sounds like you have a lot of faith in your NS which is very good! Keep us posted. We all understand the anxiety surrounding tests. ---
**Author:** ![jcdemar](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.chiarisupport.org/jcdemar/32/1226_2.png) [@jcdemar](https://forum.chiarisupport.org/u/jcdemar)\ **Post date:** [November 7, 2013, 4:05pm UTC](https://forum.chiarisupport.org/t/chiari-but-cine-mri-negative/4306/7 "2013-11-07T16:05:52Z")
My cine report said no significant blockage of flow, but my Chiari specialist knew better. Don’t worry, I know it’s hard not you, but there are Chiari docs who really do understand and can help!