# Chiari and seizures

**URL:** <https://forum.chiarisupport.org/t/chiari-and-seizures/4796>\
**Category:** General\
**Created:** [March 14, 2014, 3:37am UTC](https://forum.chiarisupport.org/t/chiari-and-seizures/4796 "2014-03-14T03:37:35Z")\
**Posts on this page:** 4\
**Page:** 1

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**Author:** ![GerryKBeloit](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.chiarisupport.org/gerrykbeloit/32/2711_2.png) [@GerryKBeloit](https://forum.chiarisupport.org/u/GerryKBeloit)\
**Post date:** [March 14, 2014, 3:37am UTC](https://forum.chiarisupport.org/t/chiari-and-seizures/4796/1 "2014-03-14T03:37:35Z")

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I was wondering if any one else has experienced a seizure possibly related to their Chiari. I spent the night in the ER last night with symptoms of a stroke after having 3 spells of losing consciousness at home, I had left face droop and left arm clumsiness and left side weakness and slurred speech. They did MRI MRA and a MRV and ruled a stroke out. I was just wondering if anyone else has experienced this.

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**Author:** ![Donna1013](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.chiarisupport.org/donna1013/32/1825_2.png) [@Donna1013](https://forum.chiarisupport.org/u/Donna1013)\
**Post date:** [March 14, 2014, 1:01pm UTC](https://forum.chiarisupport.org/t/chiari-and-seizures/4796/2 "2014-03-14T13:01:22Z")

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I hope you are feeling better today!

I never passed out, but I did have stroke-like symptoms (right-sided) before my first decompression. They lasted for over two weeks. My MRA was also normal. I told my NS and he moved up my surgery date by quite a lot. After surgery, my right sided weakness, as well as almost all of my other symptoms went away. My CSF flow was quite impaired, as I had an obstructive herniation and a brain tumor (benign) on my left cerebellar tonsil, further impeding the flow (this is apparently SUPER rare - lucky me!).

Have you been able to see a good NS? Have you told them about your new symptoms? Do you need/want physical therapy if you have remaining muscle weakness? I did PT for 6 months after my first surgery to try to even out the two sides of my body. It was very helpful.

Wishing you the best,

Donna

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**Author:** ![Michael\_Sa](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.chiarisupport.org/michael_sa/32/517_2.png) [@Michael\_Sa](https://forum.chiarisupport.org/u/Michael_Sa)\
**Post date:** [March 16, 2014, 12:16am UTC](https://forum.chiarisupport.org/t/chiari-and-seizures/4796/3 "2014-03-16T00:16:33Z")

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yes I am experiencing this right now. Currently I am at the hospital doing video EEG testing. Been in for 5 days and they still haven't found any evidence of seizures. I asked the doctor about this and she did not appear to know. I am researching the links Abby posted and hopefully the doc will take a moment and read or explain them to me.

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**Author:** ![Onesmind](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.chiarisupport.org/onesmind/32/1328_2.png) [@Onesmind](https://forum.chiarisupport.org/u/Onesmind)\
**Post date:** [March 16, 2014, 12:39am UTC](https://forum.chiarisupport.org/t/chiari-and-seizures/4796/4 "2014-03-16T00:39:53Z")

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I went through this as well. Had video EEG and initially showed no seizures until the last night and they saw something small that last for less than a minute. I was told I didn’t have epilepsy but at the time did not know what causing my seizures. It wasn’t until I found my current neurosurgeon and was told that Chiari can produce seizures in some patients. Since my decompression surgery they have gone down dramatically but still a few here and there.
