I know what you mean about the “mild” but Heffez will thoroughly go over your symptoms and reflexes. He will order a brain with cine flows mri. I don’t know if he will order you an upright or t- spine mri…call and ask. You can ask your local doctor to order them so you’ll have them before you get to WI, or pay out of pocket and get them done without a doctors order. I’m glad they agreed to see you 
I am glad as well. I think I'm almost in shock. After so many disappointments and false directions, it is hard to believe that an answer might be found. The receptionist told me that they do not do upright MRI's but I don't know about CINE flows. All he has planned at this point is an enhanced head MRI. I guess I can only assume that he knows what he needs to get an accurate diagnosis and hope that he's right.
They don’t say it’s a cine but it will be. When they put the heart rate monitor on and inject into an IV that’s what it is are you going to schedule?
I am working on getting my insurance on board. They are a local HMO, so it might be difficult. I hope not. The biggest problem is getting an appointment with my PCP. She won't give me anything until the 21st and Dr. Heffez offered me an appointment on the 18th. That's only nine days from now! It would be so good to talk with him and finally get a diagnosis.
AsaN,I know and you probably know too that in your life there are no mild symptoms it is a hell to live in.If our Dr.s were in this position they would not feel it was a small illness or mild.My life was so bad and it sounds like you are in a similar position,I too had a very boarder line case.The surgery has been a God send even though there are dysautonomia issues that could have been caused by pressure on the brainstem,even with left over pain it is a welcome relief at least I am functional.It is exciting that NSs are recognizing chiari0 and less focus on herniation.this is the way I view the reg.med.comm.because of going for so long without help.the herniation is not important as the symptoms,only we know what’s going on in our body’s.The tests are very important but the right MRIs have to be done especially when patients like us when it is not so clear.The key to help is a speacialist and Lord knows there’s not enough of them.In most chiari 0 and most herniated chiari will not be treated by a lot of reg.NSs,they deny that we can have symptoms without herniation they can see on a MRI.It sounds like you have a NS that knows about the 0thing I don’t know to much about the technical side dx but I know from a horrible live before finding the right NS.I would say the decompression is a good treatment,it has been for me.Good luck on making this decision you are in my prayers so is all on this site we’re in this together!
Thank you!
My neurologist had never actually heard of Chiari 0 until I brought the research to her but, she's been on board ever since. I'm having a terrible time with my primary care physician but working on switching to a different one today. I can't live like this anymore and every day that she keeps me waiting is many hours of discomfort for me.
It is good to hear that you feel the decompression surgery was a positive step to take. There seem to be so many people who've had complications that I was becoming afraid. Certainly, I cannot keep going the way I have been but I don't want to get worse and put my family through more fear and stress.
If nothing else, I feel less alone and that is worth so much. Every conversation I have with you and others on the site makes me feel more a part of a we and less a single person whose suffering makes no sense. I will let you know how it goes.