Cant stop googling!

I am adamant that I will die from this :frowning:
I have bad anxiety which started when I first ever got when I started getting headaches… thinking I had a tumor then strokes when I got migraines or going blind when my vision started going double ( which is a permenant feature for me now)
even tho i was told its chiari malformation last week… I am still looking at it like a life threatening thing…
so with a diagnosis I dont really know much about and conflicting things on Google about chiari deaths and my anxiety… i am a nervous wreck :frowning:
i’ve lost 6lb in 5 days … my heart doesnt seem to want to beat right anymore since diagnosis …

what circumstances o.o

I know this is easier said then done but try to relax. When I found out about my Chiari I was stressed out and worried. This will not kill you. Knowing more about this will actually help you relax. I am going in for surgery Monday and you will be fine. Take it easy.

Flower- Stop stressing yourself out you will cause yourself to have more health issues then you need....

YOU NEED to get off the computer and stop researching chiari, and or other relating factors that you are ASSUMING are related. I dont mean to sound harsh but you are being well extreme, a hypocondract(?sp)- i understand that you want to be meticulous in your searching but even you seem to agree you are going to extremes!

you are causing yourself much more harm then you are good so PLEASE stop doing anyfurther searching,fretting over this YES chiari is a scary thing, however thats what we are here for we are ALL in this together, we are here to talk to and help you through this and even help you understand things a little better... HOWEVER if you continue looking for and seeking death thats just the end result you will achieve--- so PLEASE take my advice and STOP STRESSING yourself out uncessairly!!...STRESS DOES AWFUL THINGS TO OUR BODIES!!

I am sorry if you or any others think i was to harsh but i was trying to be direct and make a point!

Okay first off - the best piece of advice I can give you is this................ ONLY GO TO WEBSITE'S THAT HAVE ORG OR NET at the end of it. Those sites are usually the ones that you will get the best information from and are the ones that have ACTUALLY researched what is being put on their site for your information and not to try to get you to come to their clinic/institute/hospital but just to give the reader knowledge. That is the single best piece of advice my own doctor gave me!!!

The Internet is a Wonderful Tool - but that is exactly what it is - a Tool and if you believe everything that you read then it is EXACTLY like saying everything that comes off the Star or National Enquirer is true.

Slow down - you need to be your best advocate in this. We are here for you as well, but YOU need to become properly informed the best that you can.

~ Lori D

I feel your pain (the googling kind I mean). I have been burning up our Internet connection since all this started with my wife. The sooner you sit down with a neuro who is a chiari specialist, the better you are going to feel. They should be able allay your fears and concerns. I know it is hard, but try to stay off the Internet. I recently convinced myself I had some terrible kidney problem and I saw the doc who ran a quick dipstick test y to tell me I was totally normal. I didn’t even show traces of the problem I thought I had. Traces would have been normal too!

Shannon,
Where are you getting your surgery done at? We at meeting with the ns in 2 days at the cleveland clinic.




shannon said:

I know this is easier said then done but try to relax. When I found out about my Chiari I was stressed out and worried. This will not kill you. Knowing more about this will actually help you relax. I am going in for surgery Monday and you will be fine. Take it easy.

thanks :smiley: I will have to make appointment for April with neuro since going away for so long tomorrow