# Another syndrome

**URL:** <https://forum.chiarisupport.org/t/another-syndrome/14420>\
**Category:** Support\
**Created:** [June 10, 2022, 3:28pm UTC](https://forum.chiarisupport.org/t/another-syndrome/14420 "2022-06-10T15:28:40Z")\
**Posts on this page:** 3\
**Page:** 1

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**Author:** ![Cmt1](https://avatars.discourse-cdn.com/v4/letter/c/e495f1/32.png) [@Cmt1](https://forum.chiarisupport.org/u/Cmt1)\
**Post date:** [June 10, 2022, 3:28pm UTC](https://forum.chiarisupport.org/t/another-syndrome/14420/1 "2022-06-10T15:28:40Z")

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Hello everyone,

Its been a while since I’ve been here. So i recently just found out besides chiari malformation type 1 I also have ehlers danlos syndrome yet to find out which type. The genetics doctor i seen, whom is amazing she spent 2 hours with me and didnt rush me at all, said chiari and ehlers goes hand in hand most of the time. Does anyone on here have these 2 syndromes together and what are your symptoms and how do you deal?

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**Author:** ![ModSupport](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.chiarisupport.org/modsupport/32/5595_2.png) [@ModSupport](https://forum.chiarisupport.org/u/ModSupport)\
**Post date:** [June 12, 2022, 4:04pm UTC](https://forum.chiarisupport.org/t/another-syndrome/14420/2 "2022-06-12T16:04:41Z")

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I’m not a patient myself. Of the seven or so people that I know with EDS, so far as I’m aware only one of them has a chiari malformation, but he’s not on here. And the one young person that I know who had the CM surgery, she didn’t have EDS. Obviously that’s a very limited selection, but it’s clear that while they MAY go hand in hand, they don’t always. I wonder what the stats are on a larger sampling.

Sharon from ModSupport

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**Author:** ![Nicki100482](https://avatars.discourse-cdn.com/v4/letter/n/f4b2a3/32.png) [@Nicki100482](https://forum.chiarisupport.org/u/Nicki100482)\
**Post date:** [October 13, 2022, 1:22am UTC](https://forum.chiarisupport.org/t/another-syndrome/14420/3 "2022-10-13T01:22:49Z")

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I have both and also just met with a genetic counselor. I don’t know which type of EDS yet so I will be seeing a geneticist but can’t get an appointment until July 2023. My Chiari surgeon suspects I have the cardio EDS… Which I heard is the worst kind to have. I halso have heart disease, heart failure, POTS, dysautonomia and syncope… Not to mention a whole list of comorbidities. It’s also interfering with my emotional and mental health. I also have CPTSD from other traumas not related to my illnesses, or should I say in addition to. I feel you​:purple\_heart:💜💜