# Latest **URL:** https://forum.chiarisupport.org/latest.md [Latest](https://forum.chiarisupport.org/latest.md) · [Categories](https://forum.chiarisupport.org/categories.md) · [Tags](https://forum.chiarisupport.org/tags.md) --- ## [Welcome To Our New Discourse Site](https://forum.chiarisupport.org/t/welcome-to-our-new-discourse-site/8812)
**Author:** [@ModSupport](https://forum.chiarisupport.org/u/ModSupport)\ **Replies:** 0\ **Last updated:** [August 20, 2016, 3:18pm UTC](https://forum.chiarisupport.org/t/welcome-to-our-new-discourse-site/8812 "2016-08-20T15:18:34Z")
Were you a member of our old Chiari Online Support Group? Simply LOG IN with your old user name and click on "Forgot password". We will send you a link to claim your old profile. First time visitor? Please go to our M… --- ## [Anxiety & Struggle](https://forum.chiarisupport.org/t/anxiety-struggle/14963)
**Author:** [@Dtellz](https://forum.chiarisupport.org/u/Dtellz)\ **Replies:** 0\ **Last updated:** [September 15, 2026, 4:03pm UTC](https://forum.chiarisupport.org/t/anxiety-struggle/14963 "2026-09-15T16:03:48Z")
--- ## [8 months post op desperately seeking hope and/or advice](https://forum.chiarisupport.org/t/8-months-post-op-desperately-seeking-hope-and-or-advice/14961)
**Author:** [@kellyd](https://forum.chiarisupport.org/u/kellyd)\ **Replies:** 1\ **Last updated:** [September 10, 2026, 6:32pm UTC](https://forum.chiarisupport.org/t/8-months-post-op-desperately-seeking-hope-and-or-advice/14961 "2026-09-10T18:32:28Z")
I’m 49 years old and eight months post-Chiari decompression. Before I say the next bit, I want to say, I have the best team of drs. I don’t think anyone has done anything wrong and I feel like they are working hard to h… --- ## [Decompression surgery was not worth it](https://forum.chiarisupport.org/t/decompression-surgery-was-not-worth-it/14957)
**Author:** [@Shasha](https://forum.chiarisupport.org/u/Shasha)\ **Replies:** 2\ **Last updated:** [September 9, 2026, 4:34pm UTC](https://forum.chiarisupport.org/t/decompression-surgery-was-not-worth-it/14957 "2026-09-09T16:34:09Z")
Does anyone feel like surgery has done nothing to exept give them more pain --- ## [Malformation awareness month](https://forum.chiarisupport.org/t/malformation-awareness-month/14958)
**Author:** [@Shasha](https://forum.chiarisupport.org/u/Shasha)\ **Replies:** 0\ **Last updated:** [September 6, 2026, 1:37am UTC](https://forum.chiarisupport.org/t/malformation-awareness-month/14958 "2026-09-06T01:37:27Z")
Please raise awareness for chiari malformation awareness month --- ## [Hello from Shawn](https://forum.chiarisupport.org/t/hello-from-shawn/14954)
**Author:** [@Shawn](https://forum.chiarisupport.org/u/Shawn)\ **Replies:** 1\ **Last updated:** [August 30, 2026, 1:48pm UTC](https://forum.chiarisupport.org/t/hello-from-shawn/14954 "2026-08-30T13:48:17Z")
Hello everyone. I had a TIA a few weeks ago. The MRIs they did showed a 7mm malformation. They found a Meningioma pressing against my brain stem. And a small aneurysm. The neurosurgeon said he has never seen someone with… --- ## [Hello - Question](https://forum.chiarisupport.org/t/hello-question/14952)
**Author:** [@Ericabak](https://forum.chiarisupport.org/u/Ericabak)\ **Replies:** 1\ **Last updated:** [August 6, 2026, 4:29pm UTC](https://forum.chiarisupport.org/t/hello-question/14952 "2026-08-06T16:29:45Z")
I originally got on here 7 years ago and I had no idea how much this group would help me. Almost ten years ago I was told I had chiari malformation and it was a 7mm after a car accident. Today my chiari malformation is 1… --- ## [Newly Diagnosed - Does everyone have surgery?](https://forum.chiarisupport.org/t/newly-diagnosed-does-everyone-have-surgery/6823)
**Author:** [@txgirl09](https://forum.chiarisupport.org/u/txgirl09)\ **Replies:** 87\ **Last updated:** [August 1, 2026, 10:22pm UTC](https://forum.chiarisupport.org/t/newly-diagnosed-does-everyone-have-surgery/6823 "2026-08-01T22:22:30Z")
I was just diagnosed a week ago with Chiari I. I've had lyme disease for many years, and headaches are nothing new to me. My neck pain and headaches at the back of my head have been much worse recently after a water pa… --- ## [Not so common symptoms... do you have?](https://forum.chiarisupport.org/t/not-so-common-symptoms-do-you-have/8916)
**Author:** [@sabrinalynn](https://forum.chiarisupport.org/u/sabrinalynn)\ **Replies:** 27\ **Last updated:** [July 30, 2026, 4:21am UTC](https://forum.chiarisupport.org/t/not-so-common-symptoms-do-you-have/8916 "2026-07-30T04:21:00Z")
Here are symptoms I'm having that aren't typically associated with Chiari. They may not be at all... but I'm curious to know if any of you experience any of these other symptoms as well.. Other symptoms: \* hand tremo… --- ## [Am I going crazy?](https://forum.chiarisupport.org/t/am-i-going-crazy/9606)
**Author:** [@drendon](https://forum.chiarisupport.org/u/drendon)\ **Replies:** 4\ **Last updated:** [July 29, 2026, 11:03pm UTC](https://forum.chiarisupport.org/t/am-i-going-crazy/9606 "2026-07-29T23:03:02Z")
I've had such a big flare up of symptoms, affecting my motor skills, symptoms of pots and just depressed and want to stay in bed. At times I feel like I am going crazy. I've dealt with anxiety since I was 12 now 21 but I… --- ## [Does anyone else have any problems with their anxiety](https://forum.chiarisupport.org/t/does-anyone-else-have-any-problems-with-their-anxiety/14947)
**Author:** [@Johnjuan](https://forum.chiarisupport.org/u/Johnjuan)\ **Replies:** 1\ **Last updated:** [July 29, 2026, 12:42pm UTC](https://forum.chiarisupport.org/t/does-anyone-else-have-any-problems-with-their-anxiety/14947 "2026-07-29T12:42:30Z")
Every since I found out that I have chiari my anxiety has increased --- ## [Supplements and Alternative Care recommendations](https://forum.chiarisupport.org/t/supplements-and-alternative-care-recommendations/14799)
**Author:** [@katemc](https://forum.chiarisupport.org/u/katemc)\ **Replies:** 6\ **Last updated:** [July 16, 2026, 3:05pm UTC](https://forum.chiarisupport.org/t/supplements-and-alternative-care-recommendations/14799 "2026-07-16T15:05:11Z")
I am curious what people have found supplement wise that has helped with symptoms or studies anyone knows of about the use of supplements to minimize chiari symptoms… --- ## [5 week post op worries](https://forum.chiarisupport.org/t/5-week-post-op-worries/14943)
**Author:** [@Nat85](https://forum.chiarisupport.org/u/Nat85)\ **Replies:** 1\ **Last updated:** [July 13, 2026, 2:46pm UTC](https://forum.chiarisupport.org/t/5-week-post-op-worries/14943 "2026-07-13T14:46:10Z")
Hey. This is my first time posting. Just looking for some feedback from those who havehad the surgery. I had my decompression surgery on 3rd of June. Before it I had occasional headaches but nothing major. What ended me … --- ## [Complications with post surgery](https://forum.chiarisupport.org/t/complications-with-post-surgery/14936)
**Author:** [@Sharon4444](https://forum.chiarisupport.org/u/Sharon4444)\ **Replies:** 1\ **Last updated:** [June 6, 2026, 12:48pm UTC](https://forum.chiarisupport.org/t/complications-with-post-surgery/14936 "2026-06-06T12:48:09Z")
I’ve been taken back in hospital with complications I’ve got a cerebral fluid leak and other infections that I need to stay in hospital for two weeks when I will I feel better when will my headaches stop --- ## [Ears Popping and Pain After Eating and being full](https://forum.chiarisupport.org/t/ears-popping-and-pain-after-eating-and-being-full/14773)
**Author:** [@Edwin\_K](https://forum.chiarisupport.org/u/Edwin_K)\ **Replies:** 8\ **Last updated:** [December 5, 2025, 3:41am UTC](https://forum.chiarisupport.org/t/ears-popping-and-pain-after-eating-and-being-full/14773 "2025-12-05T03:41:00Z")
I was diagnosed in 2013 and had decompression surgery late 2013. For the first couple of months I felt like an entirely different person. Even the first 6-7 years were much better than before my surgery. Over the last 3… --- ## [Today is Giving Tuesday. Here Are Two Easy Ways to Help Our Community](https://forum.chiarisupport.org/t/today-is-giving-tuesday-here-are-two-easy-ways-to-help-our-community/14899)
**Author:** [@Ben\_Munoz](https://forum.chiarisupport.org/u/Ben_Munoz)\ **Replies:** 0\ **Last updated:** [December 2, 2025, 3:18am UTC](https://forum.chiarisupport.org/t/today-is-giving-tuesday-here-are-two-easy-ways-to-help-our-community/14899 "2025-12-02T03:18:30Z")
Hi everyone, Today is Giving Tuesday, a day when many people look for meaningful causes to support. If you would like to help our community today, here are two simple and meaningful options. 1) Share our campaign with … --- ## [Our Community Is Coming Together. Here Is How You Can Help](https://forum.chiarisupport.org/t/our-community-is-coming-together-here-is-how-you-can-help/14895)
**Author:** [@Ben\_Munoz](https://forum.chiarisupport.org/u/Ben_Munoz)\ **Replies:** 0\ **Last updated:** [November 25, 2025, 5:41pm UTC](https://forum.chiarisupport.org/t/our-community-is-coming-together-here-is-how-you-can-help/14895 "2025-11-25T17:41:49Z")
Hi everyone, As we approach the end of the year, our entire Ben’s Friends network is launching our annual community support campaign. Each forum plays an important role, so we wanted to share a few simple ways you can h… --- ## [Share your story!](https://forum.chiarisupport.org/t/share-your-story/14889)
**Author:** [@ModSupport](https://forum.chiarisupport.org/u/ModSupport)\ **Replies:** 1\ **Last updated:** [November 3, 2025, 1:18am UTC](https://forum.chiarisupport.org/t/share-your-story/14889 "2025-11-03T01:18:46Z")
We are looking for people to share their stories in a video format, it’s pretty straightforward and won’t take up a ton of your time. If you are interested in doing that, please reach out to me and we will get that proce… --- ## [My poem for my journey ](https://forum.chiarisupport.org/t/my-poem-for-my-journey/14883)
**Author:** [@dawnwieczorek1](https://forum.chiarisupport.org/u/dawnwieczorek1)\ **Replies:** 2\ **Last updated:** [October 20, 2025, 7:12pm UTC](https://forum.chiarisupport.org/t/my-poem-for-my-journey/14883 "2025-10-20T19:12:08Z")
Between Shadows and Strength There is weight at the base of my skull, a pressure only I can feel— not silence, not peace, but a steady drum that never lets go. I walk through each day with an invisible storm, head… --- ## [Advise please](https://forum.chiarisupport.org/t/advise-please/6331)
**Author:** [@b2wc](https://forum.chiarisupport.org/u/b2wc)\ **Replies:** 35\ **Last updated:** [September 29, 2025, 7:10am UTC](https://forum.chiarisupport.org/t/advise-please/6331 "2025-09-29T07:10:25Z")
Dear All, I am new member, I was diagnosed with CM1 in Oct 2014 - I am from the UK (south of England) I am unable to find any website or support group in the UK that able to help me with the information I need to know,… --- ## [No surgery?](https://forum.chiarisupport.org/t/no-surgery/3535)
**Author:** [@jessica1](https://forum.chiarisupport.org/u/jessica1)\ **Replies:** 27\ **Last updated:** [September 25, 2025, 7:50pm UTC](https://forum.chiarisupport.org/t/no-surgery/3535 "2025-09-25T19:50:58Z")
hi all! At the risk of sounding ignorant, but just out of curiosity, does anyone know the real consequences of not treating chiari with surgery? I realize symptoms get worse, but does anyone know first hand someone livi… --- ## [Can symptoms be worsened by living at high altitude?](https://forum.chiarisupport.org/t/can-symptoms-be-worsened-by-living-at-high-altitude/14876)
**Author:** [@FrancineLou](https://forum.chiarisupport.org/u/FrancineLou)\ **Replies:** 0\ **Last updated:** [September 25, 2025, 7:40pm UTC](https://forum.chiarisupport.org/t/can-symptoms-be-worsened-by-living-at-high-altitude/14876 "2025-09-25T19:40:12Z")
I live at about a mile high elevation. Has anyone ever discussed with their neurologist or doctor if there is a possibility of this worsening symptoms? --- ## [Just something I wrote about Chiari](https://forum.chiarisupport.org/t/just-something-i-wrote-about-chiari/14854)
**Author:** [@Jeff\_C](https://forum.chiarisupport.org/u/Jeff_C)\ **Replies:** 2\ **Last updated:** [August 6, 2025, 5:03pm UTC](https://forum.chiarisupport.org/t/just-something-i-wrote-about-chiari/14854 "2025-08-06T17:03:07Z")
I wrote this about my chiari at 2am this morning. Then the picture is a screenshot of Google ai. I pasted what I wrote and it summarized it. I like the summary. There is a silence lodged inside my skull— not peace, but… --- ## [Breathing symptom](https://forum.chiarisupport.org/t/breathing-symptom/14851)
**Author:** [@Jdelong](https://forum.chiarisupport.org/u/Jdelong)\ **Replies:** 4\ **Last updated:** [August 5, 2025, 11:51pm UTC](https://forum.chiarisupport.org/t/breathing-symptom/14851 "2025-08-05T23:51:08Z")
Hey everyone, I know all of you are not doctors but I was curious as to if you experienced the neck feeling like it was getting smaller? Like having trouble swallowing? I’m feeling alone in this and would love some advic… --- ## [Working as a lawyer with chiari](https://forum.chiarisupport.org/t/working-as-a-lawyer-with-chiari/14850)
**Author:** [@Paytpayt](https://forum.chiarisupport.org/u/Paytpayt)\ **Replies:** 1\ **Last updated:** [July 29, 2025, 1:01pm UTC](https://forum.chiarisupport.org/t/working-as-a-lawyer-with-chiari/14850 "2025-07-29T13:01:00Z")
Hello all, I received my chiari diagnosis last week and was just wondering if anyone has experience working as an attorney, or in a similarly demanding field, and managing their diagnosis? I am a new attorney (just grad… --- ## [Symptoms are back](https://forum.chiarisupport.org/t/symptoms-are-back/14844)
**Author:** [@bebetread](https://forum.chiarisupport.org/u/bebetread)\ **Replies:** 3\ **Last updated:** [July 16, 2025, 10:52am UTC](https://forum.chiarisupport.org/t/symptoms-are-back/14844 "2025-07-16T10:52:06Z")
Good morning! 4 years ago I got diagnosed with Type 1 Chiari. 3 years ago I had surgery and it was the best decision I have made. But last year I had a neck infusion surgery and a month later my symptoms for Chiari came … --- ## [Michigan's best chiari specialists and Neurosurgeons](https://forum.chiarisupport.org/t/michigans-best-chiari-specialists-and-neurosurgeons/14845)
**Author:** [@Jdelong](https://forum.chiarisupport.org/u/Jdelong)\ **Replies:** 1\ **Last updated:** [July 12, 2025, 12:35pm UTC](https://forum.chiarisupport.org/t/michigans-best-chiari-specialists-and-neurosurgeons/14845 "2025-07-12T12:35:55Z")
Hello everyone, I’m from Michigan and I was wondering if there are any recommendations for really good Chiari specials or neurosurgeons?? --- ## [Medication advice](https://forum.chiarisupport.org/t/medication-advice/14839)
**Author:** [@Jdelong](https://forum.chiarisupport.org/u/Jdelong)\ **Replies:** 3\ **Last updated:** [July 11, 2025, 2:55am UTC](https://forum.chiarisupport.org/t/medication-advice/14839 "2025-07-11T02:55:33Z")
Hello again everyone, I need some advice! A couple months ago when the symptoms started! It was mild and I started taking gabapentin and it worked until I got some weird side effects! I have pericarditis as well, but I j… --- ## [Need advice on recent Chiari diagnosis](https://forum.chiarisupport.org/t/need-advice-on-recent-chiari-diagnosis/14834)
**Author:** [@Jdelong](https://forum.chiarisupport.org/u/Jdelong)\ **Replies:** 10\ **Last updated:** [July 9, 2025, 1:46am UTC](https://forum.chiarisupport.org/t/need-advice-on-recent-chiari-diagnosis/14834 "2025-07-09T01:46:44Z")
Hello everyone, I’m new to this forum, but I just got diagnosed with Chiari type 1 two months ago, at first the headaches were bad, then I started taking medicine. Since I’m trying to get on diffeeent medicine to manage … --- ## [Just thought id share](https://forum.chiarisupport.org/t/just-thought-id-share/5607)
**Author:** [@smiles3](https://forum.chiarisupport.org/u/smiles3)\ **Replies:** 4\ **Last updated:** [June 27, 2025, 10:55am UTC](https://forum.chiarisupport.org/t/just-thought-id-share/5607 "2025-06-27T10:55:03Z")
So I know we cant just go around trying everything that's suggested to us but I feel as a survivor of seven years with Chiari headaches, dizzy spells & "brain farts" (just to name a few) I figured I would let you about o… [Next page](https://forum.chiarisupport.org/latest.md?page=1)