# Greetings and Introductions **URL:** https://forum.chiarisupport.org/c/welcome/new-member-introductions/14.md [Latest](https://forum.chiarisupport.org/latest.md) · [Categories](https://forum.chiarisupport.org/categories.md) · [Tags](https://forum.chiarisupport.org/tags.md) --- ## [About the Greetings and Introductions category](https://forum.chiarisupport.org/t/about-the-greetings-and-introductions-category/20)
**Author:** [@system](https://forum.chiarisupport.org/u/system)\ **Replies:** 10\ **Last updated:** [November 16, 2023, 8:34pm UTC](https://forum.chiarisupport.org/t/about-the-greetings-and-introductions-category/20 "2023-11-16T20:34:34Z")
New members, start your experience here. Introduce yourself and share your story. Let us welcome you --- ## [Anxiety & Struggle](https://forum.chiarisupport.org/t/anxiety-struggle/14963)
**Author:** [@Dtellz](https://forum.chiarisupport.org/u/Dtellz)\ **Replies:** 0\ **Last updated:** [September 15, 2026, 4:03pm UTC](https://forum.chiarisupport.org/t/anxiety-struggle/14963 "2026-09-15T16:03:48Z")
--- ## [Hello from Shawn](https://forum.chiarisupport.org/t/hello-from-shawn/14954)
**Author:** [@Shawn](https://forum.chiarisupport.org/u/Shawn)\ **Replies:** 1\ **Last updated:** [August 30, 2026, 1:48pm UTC](https://forum.chiarisupport.org/t/hello-from-shawn/14954 "2026-08-30T13:48:17Z")
Hello everyone. I had a TIA a few weeks ago. The MRIs they did showed a 7mm malformation. They found a Meningioma pressing against my brain stem. And a small aneurysm. The neurosurgeon said he has never seen someone with… --- ## [Newly Diagnosed - Does everyone have surgery?](https://forum.chiarisupport.org/t/newly-diagnosed-does-everyone-have-surgery/6823)
**Author:** [@txgirl09](https://forum.chiarisupport.org/u/txgirl09)\ **Replies:** 87\ **Last updated:** [August 1, 2026, 10:22pm UTC](https://forum.chiarisupport.org/t/newly-diagnosed-does-everyone-have-surgery/6823 "2026-08-01T22:22:30Z")
I was just diagnosed a week ago with Chiari I. I've had lyme disease for many years, and headaches are nothing new to me. My neck pain and headaches at the back of my head have been much worse recently after a water pa… --- ## [Just an intro from fellow chiarian from UK](https://forum.chiarisupport.org/t/just-an-intro-from-fellow-chiarian-from-uk/14750)
**Author:** [@Helzbellz77](https://forum.chiarisupport.org/u/Helzbellz77)\ **Replies:** 10\ **Last updated:** [October 20, 2024, 8:03pm UTC](https://forum.chiarisupport.org/t/just-an-intro-from-fellow-chiarian-from-uk/14750 "2024-10-20T20:03:19Z")
Hello everyone .just thought I’d say hi from UK .diagnosed in April this year after 4 months of severe head pain and a range of other issues Currently on topirimate which seems to be helping to control the headaches but… --- ## [Any United Kingdom Warriors Out There 😘](https://forum.chiarisupport.org/t/any-united-kingdom-warriors-out-there/12260)
**Author:** [@ChiariWarrior13](https://forum.chiarisupport.org/u/ChiariWarrior13)\ **Replies:** 4\ **Last updated:** [October 5, 2024, 9:47pm UTC](https://forum.chiarisupport.org/t/any-united-kingdom-warriors-out-there/12260 "2024-10-05T21:47:45Z")
Hey there please read my profile if any of u are interested in chatting more. Be happy to hear from u. Sorry to say United kingdom…It’s just that due to the NHS out experiences and treatment mat be different. Any chair… --- ## [Neurosurgeon and Ohio](https://forum.chiarisupport.org/t/neurosurgeon-and-ohio/14734)
**Author:** [@Brenda\_Y](https://forum.chiarisupport.org/u/Brenda_Y)\ **Replies:** 0\ **Last updated:** [September 3, 2024, 5:19pm UTC](https://forum.chiarisupport.org/t/neurosurgeon-and-ohio/14734 "2024-09-03T17:19:38Z")
--- ## [My brain does not feel right](https://forum.chiarisupport.org/t/my-brain-does-not-feel-right/14632)
**Author:** [@Kris64](https://forum.chiarisupport.org/u/Kris64)\ **Replies:** 5\ **Last updated:** [November 23, 2023, 1:58am UTC](https://forum.chiarisupport.org/t/my-brain-does-not-feel-right/14632 "2023-11-23T01:58:43Z")
Hi, I’m new to this group and have spent a few days reading through some of the threads, which have been very helpful and reassuring. My brain does not feel right. I’ve felt that way at times for the last few years, but… --- ## [Intro and a few questions](https://forum.chiarisupport.org/t/intro-and-a-few-questions/14615)
**Author:** [@Austin](https://forum.chiarisupport.org/u/Austin)\ **Replies:** 4\ **Last updated:** [November 17, 2023, 2:29pm UTC](https://forum.chiarisupport.org/t/intro-and-a-few-questions/14615 "2023-11-17T14:29:43Z")
Hi everyone, My name is Austin, I was seeing a neurologist for chronic headaches that started in 2021. After getting an MRI it was discovered that I have a 4mm displacement. My symptoms are largely relegated to headache… --- ## [Welcome Andrea!](https://forum.chiarisupport.org/t/welcome-andrea/14544)
**Author:** [@ModSupport](https://forum.chiarisupport.org/u/ModSupport)\ **Replies:** 1\ **Last updated:** [February 21, 2023, 11:50pm UTC](https://forum.chiarisupport.org/t/welcome-andrea/14544 "2023-02-21T23:50:14Z")
Hi @Amd1988 and welcome to Ben’s Friends! I wanted to make certain that your story didn’t get lost, especially because you have some question. Sharon from ModSupport Good morning. I’m hoping I can have some opinions he… --- ## [Hello group](https://forum.chiarisupport.org/t/hello-group/13829)
**Author:** [@Jayjay](https://forum.chiarisupport.org/u/Jayjay)\ **Replies:** 1\ **Last updated:** [November 17, 2020, 2:41am UTC](https://forum.chiarisupport.org/t/hello-group/13829 "2020-11-17T02:41:15Z")
First I would like to thank the creator(s) of this group. I’ve read many of the stories and it sounds just like me and after this ordeal I get I’m not alone or delusional. My story begins a year after I came back from a… --- ## [Newbie - Charlee](https://forum.chiarisupport.org/t/newbie-charlee/13684)
**Author:** [@Charlee](https://forum.chiarisupport.org/u/Charlee)\ **Replies:** 7\ **Last updated:** [September 12, 2020, 2:40am UTC](https://forum.chiarisupport.org/t/newbie-charlee/13684 "2020-09-12T02:40:40Z")
Hi all, Looking forward to learning how other people with Chiari are doing and what makes things easier or harder. I am especially interested in those who are older (I am near 65). Seems harder to figure out what new pr… --- ## [Moving through](https://forum.chiarisupport.org/t/moving-through/13687)
**Author:** [@BFIntern\_Jakob](https://forum.chiarisupport.org/u/BFIntern_Jakob)\ **Replies:** 1\ **Last updated:** [September 8, 2020, 8:50pm UTC](https://forum.chiarisupport.org/t/moving-through/13687 "2020-09-08T20:50:59Z")
Hi Charlene (@Charlee), Welcome to your new community! It sounds like you have been pursuing your symptoms for many years now, I hope we can help shed light on some ways that our members cope with those symptoms. It see… --- ## [Meet Jenny](https://forum.chiarisupport.org/t/meet-jenny/13596)
**Author:** [@BFIntern\_Jakob](https://forum.chiarisupport.org/u/BFIntern_Jakob)\ **Replies:** 2\ **Last updated:** [August 7, 2020, 1:20am UTC](https://forum.chiarisupport.org/t/meet-jenny/13596 "2020-08-07T01:20:07Z")
Hi @JennyAnn, I wanted to take the chance to introduce you to our community! I noticed that you would like to meet more folks like you. You have come to the right place! I never realized just how important that was unti… --- ## [New to this site](https://forum.chiarisupport.org/t/new-to-this-site/13488)
**Author:** [@Mrs.Awesome](https://forum.chiarisupport.org/u/Mrs.Awesome)\ **Replies:** 0\ **Last updated:** [May 30, 2020, 6:06pm UTC](https://forum.chiarisupport.org/t/new-to-this-site/13488 "2020-05-30T18:06:16Z")
Hi everybody, my name is Nikki and I’m new to this site. My story is long as I’m sure most of yours is as well. I was diagnosed in 2018 after I had a hysterectomy in 2017. I was experiencing extreme fatigue, migraines, m… --- ## [Hello i am new so bear with me](https://forum.chiarisupport.org/t/hello-i-am-new-so-bear-with-me/13117)
**Author:** [@Debmol62](https://forum.chiarisupport.org/u/Debmol62)\ **Replies:** 18\ **Last updated:** [April 27, 2020, 4:42pm UTC](https://forum.chiarisupport.org/t/hello-i-am-new-so-bear-with-me/13117 "2020-04-27T16:42:56Z")
Hi, I am a 57 year old Woman & Widow that has no Family and i am on Disability due to all my surgeries and live in Port Huron Michigan… i live in constant unbearable pain. and i want to give up cuz i can’t take it no … --- ## [A little about my story](https://forum.chiarisupport.org/t/a-little-about-my-story/13384)
**Author:** [@JessieJames](https://forum.chiarisupport.org/u/JessieJames)\ **Replies:** 3\ **Last updated:** [April 23, 2020, 4:34am UTC](https://forum.chiarisupport.org/t/a-little-about-my-story/13384 "2020-04-23T04:34:10Z")
Hi everyone! I’m Jessica and my boyfriend is James (hence the name) Wow Chiari! It can be something that can stop you right in your tracks. So my boyfrind who is 42, just found out at the beginning of the month he has … --- ## [Vegan Chiarian, not much "pain" yet](https://forum.chiarisupport.org/t/vegan-chiarian-not-much-pain-yet/10883)
**Author:** [@Cynjo](https://forum.chiarisupport.org/u/Cynjo)\ **Replies:** 1\ **Last updated:** [April 9, 2020, 4:11am UTC](https://forum.chiarisupport.org/t/vegan-chiarian-not-much-pain-yet/10883 "2020-04-09T04:11:59Z")
I’m 42. 12 years ago thought I had MS, got an MRI, doc told me my brain was perfect and made me feel crazy. Turns out I had 4mm herniation then. My symptoms went away, and I was great until May 2017. I think that I cause… --- ## [Totally New](https://forum.chiarisupport.org/t/totally-new/13335)
**Author:** [@anon76584752](https://forum.chiarisupport.org/u/anon76584752)\ **Replies:** 3\ **Last updated:** [April 9, 2020, 11:16am UTC](https://forum.chiarisupport.org/t/totally-new/13335 "2020-04-09T11:16:17Z")
Due to Covid, my MRI has been delayed for 2 months. I’ve been going to an amazing chiropractor for almost a year now, & she believes I have chiari. I’d never heard of it before, but after reading through alot of medica… --- ## [Newbie here! Hi!](https://forum.chiarisupport.org/t/newbie-here-hi/13315)
**Author:** [@Kylieowen](https://forum.chiarisupport.org/u/Kylieowen)\ **Replies:** 6\ **Last updated:** [March 26, 2020, 1:20pm UTC](https://forum.chiarisupport.org/t/newbie-here-hi/13315 "2020-03-26T13:20:41Z")
Hi everyone! I’m new here and I wanted to introduce myself. I’m Kylie and I live in Iowa. I am a mom of two amazing kiddos, Emma-12 and Drake-9. I was recently diagnosed via mri which I had due to becoming extremely s… --- ## [Recently diagnosed and anxious](https://forum.chiarisupport.org/t/recently-diagnosed-and-anxious/13296)
**Author:** [@Camdan](https://forum.chiarisupport.org/u/Camdan)\ **Replies:** 1\ **Last updated:** [March 15, 2020, 11:24pm UTC](https://forum.chiarisupport.org/t/recently-diagnosed-and-anxious/13296 "2020-03-15T23:24:42Z")
Hi everyone, although this is my first post I have spent the last 6 weeks reading through all the discussions to try to make sense as to what is going on with me. After 3 years of feeling like a hypochondriac I was fina… --- ## [Growing Syrinx post 2012 Chiari 1 Decompression](https://forum.chiarisupport.org/t/growing-syrinx-post-2012-chiari-1-decompression/13286)
**Author:** [@Tahoemom](https://forum.chiarisupport.org/u/Tahoemom)\ **Replies:** 0\ **Last updated:** [March 14, 2020, 4:03am UTC](https://forum.chiarisupport.org/t/growing-syrinx-post-2012-chiari-1-decompression/13286 "2020-03-14T04:03:39Z")
Hi All! New to the group. I am a 47 year old married Mom of 1 (18 yr old). My decompression surgery was in 2012. My primary symptoms were exertional headaches and neck pain. Over the years, I continued to receive neur… --- ## [New and need love and support](https://forum.chiarisupport.org/t/new-and-need-love-and-support/13277)
**Author:** [@NikkiChiaristrong](https://forum.chiarisupport.org/u/NikkiChiaristrong)\ **Replies:** 0\ **Last updated:** [March 12, 2020, 11:50am UTC](https://forum.chiarisupport.org/t/new-and-need-love-and-support/13277 "2020-03-12T11:50:47Z")
Hello everyone I waited a long time to actually write something mostly because at first i thought I was the only one experiencing this pain but what I want to know how about your decision making your anxiety or depressio… --- ## [New & Concerned](https://forum.chiarisupport.org/t/new-concerned/13250)
**Author:** [@Graham25](https://forum.chiarisupport.org/u/Graham25)\ **Replies:** 14\ **Last updated:** [March 7, 2020, 3:15pm UTC](https://forum.chiarisupport.org/t/new-concerned/13250 "2020-03-07T15:15:31Z")
Hey y’all, my name is Diana and I’m 25 years old, from Columbia, SC. I was diagnosed with chiari malformation in January along with a syrinx on my spine. This was determined after and EMG, nerve study and MRI. I was refe… --- ## [Hello.. I guess](https://forum.chiarisupport.org/t/hello-i-guess/12759)
**Author:** [@leirae](https://forum.chiarisupport.org/u/leirae)\ **Replies:** 3\ **Last updated:** [March 4, 2020, 3:36pm UTC](https://forum.chiarisupport.org/t/hello-i-guess/12759 "2020-03-04T15:36:27Z")
I recently decided to find some sort of support. Mainly because there is nobody close to me with any sort of Chiari. I feel like I’m not welcome in any of the groups I’ve tried. With that being said, hello I’m Leigha. I … --- ## [Hi! I’m new and a little scared!](https://forum.chiarisupport.org/t/hi-i-m-new-and-a-little-scared/13163)
**Author:** [@Felicia](https://forum.chiarisupport.org/u/Felicia)\ **Replies:** 13\ **Last updated:** [February 15, 2020, 12:55pm UTC](https://forum.chiarisupport.org/t/hi-i-m-new-and-a-little-scared/13163 "2020-02-15T12:55:59Z")
Hi there! :hugs: I was diagnosed in November 2019 and just had my 2nd appointment with my neurosurgeon yesterday. He told me that we will be moving forward with surgery. I’ve always been very blessed to be healthy until… --- ## [Newly Diagnosed, Lots to Learn](https://forum.chiarisupport.org/t/newly-diagnosed-lots-to-learn/13073)
**Author:** [@kendallmcn](https://forum.chiarisupport.org/u/kendallmcn)\ **Replies:** 1\ **Last updated:** [February 23, 2020, 1:29am UTC](https://forum.chiarisupport.org/t/newly-diagnosed-lots-to-learn/13073 "2020-02-23T01:29:24Z")
Hey everybody. So I just got the call about Chiari from my neurologist a couple weeks ago and have been at a loss for information since. I have epilepsy, so I went in for a routine MRI back in December. When my neurologi… --- ## [Hello to all, I’m new](https://forum.chiarisupport.org/t/hello-to-all-i-m-new/12831)
**Author:** [@Choc](https://forum.chiarisupport.org/u/Choc)\ **Replies:** 5\ **Last updated:** [February 1, 2020, 4:22am UTC](https://forum.chiarisupport.org/t/hello-to-all-i-m-new/12831 "2020-02-01T04:22:40Z")
Good day! I am grateful to find this group. I am from Singapore. CM is rare and I cannot find any friend who knows enough to chat with. Here’s my story. I woke up on Christmas day 2018 with numbness on 2 fingers. It p… --- ## [Hello chiari peeps. Recovering from 2nd decompression surgery](https://forum.chiarisupport.org/t/hello-chiari-peeps-recovering-from-2nd-decompression-surgery/12930)
**Author:** [@Css2141](https://forum.chiarisupport.org/u/Css2141)\ **Replies:** 4\ **Last updated:** [December 18, 2019, 10:28am UTC](https://forum.chiarisupport.org/t/hello-chiari-peeps-recovering-from-2nd-decompression-surgery/12930 "2019-12-18T10:28:24Z")
Hello everyone, I am new to the group and home recovering from a second decompression surgery. This one has been a rough recovery. Anyone in Houston? --- ## [Anyone in Portland, Oregon?](https://forum.chiarisupport.org/t/anyone-in-portland-oregon/12809)
**Author:** [@Memes](https://forum.chiarisupport.org/u/Memes)\ **Replies:** 5\ **Last updated:** [December 12, 2019, 5:50am UTC](https://forum.chiarisupport.org/t/anyone-in-portland-oregon/12809 "2019-12-12T05:50:26Z")
Hi everyone! This is my first experience with this support group and I am feeling so grateful to have found it. I am 35 years old and was just diagnosed about 1 month ago although I have had issues for as long as I can… [Next page](https://forum.chiarisupport.org/c/welcome/new-member-introductions/14.md?page=1)