# Welcome **URL:** https://forum.chiarisupport.org/c/welcome/23.md?page=2 [Latest](https://forum.chiarisupport.org/latest.md) · [Categories](https://forum.chiarisupport.org/categories.md) · [Tags](https://forum.chiarisupport.org/tags.md) **Page:** 3 --- ## [Creating a New Account](https://forum.chiarisupport.org/t/creating-a-new-account/12251)
**Author:** [@ModSupport](https://forum.chiarisupport.org/u/ModSupport)\ **Replies:** 0\ **Last updated:** [May 17, 2019, 3:09pm UTC](https://forum.chiarisupport.org/t/creating-a-new-account/12251 "2019-05-17T15:09:11Z")
--- ## [Daughter diagnosed with Chiari Malformation 1](https://forum.chiarisupport.org/t/daughter-diagnosed-with-chiari-malformation-1/8850)
**Author:** [@Panda1994](https://forum.chiarisupport.org/u/Panda1994)\ **Replies:** 9\ **Last updated:** [March 9, 2019, 6:09pm UTC](https://forum.chiarisupport.org/t/daughter-diagnosed-with-chiari-malformation-1/8850 "2019-03-09T18:09:58Z")
My daughter is 22 years old and was diagnosed with Chiari Malformation 1 last year. She was having headaches and a MRI was ordered which incidentally showed the Chiari. Her tonsils are at 6mm. (Forgive me if I don't use … --- ## [Surgery worries](https://forum.chiarisupport.org/t/surgery-worries/11151)
**Author:** [@ChariMom](https://forum.chiarisupport.org/u/ChariMom)\ **Replies:** 4\ **Last updated:** [March 1, 2019, 6:08am UTC](https://forum.chiarisupport.org/t/surgery-worries/11151 "2019-03-01T06:08:29Z")
I am 35 years old and have surgery scheduled for the end of June. I am really nervous. I have three young children i care for full time. I was diagnosed with Arnold chari , keppel Fels syndrom, scoliosis and arthritis…… --- ## [Discouraged; New to the diagnosis](https://forum.chiarisupport.org/t/discouraged-new-to-the-diagnosis/11625)
**Author:** [@JBROWNELL](https://forum.chiarisupport.org/u/JBROWNELL)\ **Replies:** 4\ **Last updated:** [February 3, 2019, 11:51pm UTC](https://forum.chiarisupport.org/t/discouraged-new-to-the-diagnosis/11625 "2019-02-03T23:51:38Z")
I am newly diagnosed with 4mm cerebellum tonsillar ectopia after an MRI because of a TBI concussion/whiplash car accident. I am very discouraged as the doctors I have spoken with are dismissing the possibility of my sym… --- ## [Visual disoriented](https://forum.chiarisupport.org/t/visual-disoriented/11932)
**Author:** [@Kerriann](https://forum.chiarisupport.org/u/Kerriann)\ **Replies:** 1\ **Last updated:** [February 3, 2019, 12:31pm UTC](https://forum.chiarisupport.org/t/visual-disoriented/11932 "2019-02-03T12:31:28Z")
Hi all. I was diagnosed with chiari in November 2018. It all started with dizziness, headaches, vomiting, loss of appitite, neck pain. It all came on in one day and left me bed bound for weeks. Doctors diagnosed me with… --- ## [We need help!](https://forum.chiarisupport.org/t/we-need-help/10857)
**Author:** [@ChiariMom121713](https://forum.chiarisupport.org/u/ChiariMom121713)\ **Replies:** 19\ **Last updated:** [January 30, 2019, 6:06pm UTC](https://forum.chiarisupport.org/t/we-need-help/10857 "2019-01-30T18:06:15Z")
My daughter was diagnosed 4 years ago with Chiari and Syringomyelia. She had decompression surgery. She’s battled headaches every since but until just recently the headaches have become worse and chronic. The doctors hav… --- ## [Newly diagnosed and frustrated still](https://forum.chiarisupport.org/t/newly-diagnosed-and-frustrated-still/11888)
**Author:** [@VeronicaCD](https://forum.chiarisupport.org/u/VeronicaCD)\ **Replies:** 8\ **Last updated:** [January 30, 2019, 2:24pm UTC](https://forum.chiarisupport.org/t/newly-diagnosed-and-frustrated-still/11888 "2019-01-30T14:24:32Z")
So I’ve had unexplained symptoms and issues my whole life… my neurosurgeon says it can cause my head and neck ache… my fiance asks, knowing I’ve been recently diagnosed with neuropathic pain, could her body pain be from… --- ## [The life I leave with a Chiari](https://forum.chiarisupport.org/t/the-life-i-leave-with-a-chiari/11993)
**Author:** [@littledeb](https://forum.chiarisupport.org/u/littledeb)\ **Replies:** 0\ **Last updated:** [January 29, 2019, 12:49am UTC](https://forum.chiarisupport.org/t/the-life-i-leave-with-a-chiari/11993 "2019-01-29T00:49:54Z")
Hi, my name is Debra! I got on for a while but it’s been a long time! I have learned a few things that I want to share in hopes it might help others! I had 2 MRI’s done on my Chiari after I found out for sure I had on… --- ## [New Here. Looking for Support](https://forum.chiarisupport.org/t/new-here-looking-for-support/11921)
**Author:** [@Warrior](https://forum.chiarisupport.org/u/Warrior)\ **Replies:** 1\ **Last updated:** [January 11, 2019, 3:07pm UTC](https://forum.chiarisupport.org/t/new-here-looking-for-support/11921 "2019-01-11T15:07:11Z")
Hello Everyone! I’m glad I found this site. It’s been quite a journey. I am 31 years old. When I turned 30 I started having numbness in my legs and back pain. Low grade full body tremor. Occasional headaches. CM-1 was … --- ## [New Yorker here](https://forum.chiarisupport.org/t/new-yorker-here/11898)
**Author:** [@Bridgetchiari](https://forum.chiarisupport.org/u/Bridgetchiari)\ **Replies:** 1\ **Last updated:** [January 5, 2019, 5:32pm UTC](https://forum.chiarisupport.org/t/new-yorker-here/11898 "2019-01-05T17:32:26Z")
Hi - My name is Bridget, and I live in New York (Westchester County). I was diagnosed w/Chiari in 2018. With progressing symptoms, I’ve had to alter my life significantly. I am coming to terms w/the reality of surgery… --- ## [I’m a newbie](https://forum.chiarisupport.org/t/i-m-a-newbie/11881)
**Author:** [@Jassyjojo](https://forum.chiarisupport.org/u/Jassyjojo)\ **Replies:** 4\ **Last updated:** [December 30, 2018, 12:50am UTC](https://forum.chiarisupport.org/t/i-m-a-newbie/11881 "2018-12-30T00:50:02Z")
Hi. I’m a newbie. After 4 months with the most excruciating headache, dizzy spells, nausea and vomiting, I finally went to my doc. I blamed it all on a dodgy disc and my doc sent me for X-ray, MRI and Ortho assessment. T… --- ## [New and have some questions ](https://forum.chiarisupport.org/t/new-and-have-some-questions/11611)
**Author:** [@Jez](https://forum.chiarisupport.org/u/Jez)\ **Replies:** 1\ **Last updated:** [December 26, 2018, 12:49pm UTC](https://forum.chiarisupport.org/t/new-and-have-some-questions/11611 "2018-12-26T12:49:33Z")
Hello, Im new to the group and thank you for accepting me. Back in 1999 I was diagnosed with Arnold-Chiari malformation type 1. It was a routine MRI scan as I was getting headaches which were not at the back of the head.… --- ## [Hey, any other teenagers here? I'm Kayla!](https://forum.chiarisupport.org/t/hey-any-other-teenagers-here-im-kayla/11829)
**Author:** [@thoughtfullysublime](https://forum.chiarisupport.org/u/thoughtfullysublime)\ **Replies:** 8\ **Last updated:** [December 6, 2018, 9:36pm UTC](https://forum.chiarisupport.org/t/hey-any-other-teenagers-here-im-kayla/11829 "2018-12-06T21:36:49Z")
Hey what’s up. I’m Kayla :slight\_smile: --- ## [Hello! 3 weeks post op and questions](https://forum.chiarisupport.org/t/hello-3-weeks-post-op-and-questions/11807)
**Author:** [@Clairence80](https://forum.chiarisupport.org/u/Clairence80)\ **Replies:** 4\ **Last updated:** [December 6, 2018, 5:21pm UTC](https://forum.chiarisupport.org/t/hello-3-weeks-post-op-and-questions/11807 "2018-12-06T17:21:30Z")
Hello everyone! I just joined the group. I am three weeks post op! I found out I had Chiari in August after dealing with a numb right arm for about months. Turned out I had a Chiari malformation and a syrinx from my C5-T… --- ## [Welcome Kayla!](https://forum.chiarisupport.org/t/welcome-kayla/11825)
**Author:** [@Zaid\_BFintern](https://forum.chiarisupport.org/u/Zaid_BFintern)\ **Replies:** 2\ **Last updated:** [December 3, 2018, 4:03pm UTC](https://forum.chiarisupport.org/t/welcome-kayla/11825 "2018-12-03T16:03:44Z")
@thoughtfullysublime Welcome to Ben’s Friends Kayla! Interesting username :slight\_smile: This is one of the few times where someone your age (14) has joined this forum. Often times parents join on behalf of their kids … --- ## [Welcome to Ben's Friends Michael!](https://forum.chiarisupport.org/t/welcome-to-bens-friends-michael/11826)
**Author:** [@Zaid\_BFintern](https://forum.chiarisupport.org/u/Zaid_BFintern)\ **Replies:** 0\ **Last updated:** [December 2, 2018, 5:53pm UTC](https://forum.chiarisupport.org/t/welcome-to-bens-friends-michael/11826 "2018-12-02T17:53:25Z")
@Badneckmurph Welcome to Ben’s Friends Michael! I see you’re a lifelong guitarist - you have to be a fan of Queen. Did you watch the new Bohemian Rhapsody movie (I highly recommend it). I want to take this chance to w… --- ## [Pressure behind left eye and migraine](https://forum.chiarisupport.org/t/pressure-behind-left-eye-and-migraine/11809)
**Author:** [@Malibuski](https://forum.chiarisupport.org/u/Malibuski)\ **Replies:** 1\ **Last updated:** [December 1, 2018, 7:48pm UTC](https://forum.chiarisupport.org/t/pressure-behind-left-eye-and-migraine/11809 "2018-12-01T19:48:28Z")
Hello, I was diagnosed with Chiari a year and a half a go. I am currently experiencing migraines on the left side of my head, with a lot of pressure behind my left eye. This has occurred for 4/6 days. Is this a chiari… --- ## [Welcome CJ!](https://forum.chiarisupport.org/t/welcome-cj/11821)
**Author:** [@Zaid\_BFintern](https://forum.chiarisupport.org/u/Zaid_BFintern)\ **Replies:** 0\ **Last updated:** [November 30, 2018, 5:19pm UTC](https://forum.chiarisupport.org/t/welcome-cj/11821 "2018-11-30T17:19:17Z")
@CJJohnson Welcome to Ben’s Friends CJ! It’s great to see that you take an optimistic approach towards Chiari - I think that’s very admirable. With regards to this forum, I am sure that you will find many patients tha… --- ## [Welcome Michael!](https://forum.chiarisupport.org/t/welcome-michael/11815)
**Author:** [@Zaid\_BFintern](https://forum.chiarisupport.org/u/Zaid_BFintern)\ **Replies:** 0\ **Last updated:** [November 29, 2018, 2:59am UTC](https://forum.chiarisupport.org/t/welcome-michael/11815 "2018-11-29T02:59:42Z")
@mick1 I’d like to take this chance to welcome you to Ben’s Friends Michael! From your profile, I can see that you experienced something that seems to be common on this forum. Patients go in to understand their symptom… --- ## [Welcome Adele!](https://forum.chiarisupport.org/t/welcome-adele/11814)
**Author:** [@Zaid\_BFintern](https://forum.chiarisupport.org/u/Zaid_BFintern)\ **Replies:** 0\ **Last updated:** [November 29, 2018, 2:56am UTC](https://forum.chiarisupport.org/t/welcome-adele/11814 "2018-11-29T02:56:29Z")
@Adele I’d like to take this opportunity to welcome you to Ben’s Friends Adele! On this forum you may find people that are going through the same things as you - sometimes it’s hard to talk about Chiari with people tha… --- ## [New to the group- 3 months post-op](https://forum.chiarisupport.org/t/new-to-the-group-3-months-post-op/11703)
**Author:** [@fatieboom](https://forum.chiarisupport.org/u/fatieboom)\ **Replies:** 1\ **Last updated:** [October 16, 2018, 2:27am UTC](https://forum.chiarisupport.org/t/new-to-the-group-3-months-post-op/11703 "2018-10-16T02:27:13Z")
Hello everyone. I am new to the group and very happy to have found a support network. I will try and keep my story brief. I was diagnosed with chiari malformation in July 2018 and underwent surgery two weeks later, as I … --- ## [Dizziness and Chiari - Information & Self Help](https://forum.chiarisupport.org/t/dizziness-and-chiari-information-self-help/8793)
**Author:** [@Jules\_G](https://forum.chiarisupport.org/u/Jules_G)\ **Replies:** 4\ **Last updated:** [October 16, 2018, 1:59am UTC](https://forum.chiarisupport.org/t/dizziness-and-chiari-information-self-help/8793 "2018-10-16T01:59:39Z")
Be assured that dizziness and poor balance can be a symptom of Chiari regardless of what well-meaning physicians tell you. This does not mean that you have to argue with your health care professionals or dismiss what the… --- ## [Welcome Erin!](https://forum.chiarisupport.org/t/welcome-erin/11577)
**Author:** [@Zaid\_BFintern](https://forum.chiarisupport.org/u/Zaid_BFintern)\ **Replies:** 1\ **Last updated:** [September 17, 2018, 11:33pm UTC](https://forum.chiarisupport.org/t/welcome-erin/11577 "2018-09-17T23:33:58Z")
@OctoberGirl Welcome to Ben’s Friends Erin! October is my favorite month too - the weather is perfect and people really get into the fall spirit. For some reason i also really love Halloween even though I rarely dress u… --- ## [HELP! Im new here](https://forum.chiarisupport.org/t/help-im-new-here/11604)
**Author:** [@emcbain4](https://forum.chiarisupport.org/u/emcbain4)\ **Replies:** 1\ **Last updated:** [September 14, 2018, 10:47pm UTC](https://forum.chiarisupport.org/t/help-im-new-here/11604 "2018-09-14T22:47:41Z")
Hi Everyone, I could use some help and support here. I was told three years ago i had a cyst in my brain but i was fine because it was asymptomatic, although i suffered severe TMJ issues. Last year i suffered severe wh… --- ## [How long til our voices are heard](https://forum.chiarisupport.org/t/how-long-til-our-voices-are-heard/11571)
**Author:** [@Sophielea27](https://forum.chiarisupport.org/u/Sophielea27)\ **Replies:** 3\ **Last updated:** [September 13, 2018, 12:42am UTC](https://forum.chiarisupport.org/t/how-long-til-our-voices-are-heard/11571 "2018-09-13T00:42:17Z")
hey all im new to this group im sophie and im 28 from leicester I have chiari malformation type 1 which has caused syringomyelia, 3 years it took me to get a formal diagnosis… I was referred to a surgeon through my cons… --- ## [Welcome Marisa!](https://forum.chiarisupport.org/t/welcome-marisa/11576)
**Author:** [@Zaid\_BFintern](https://forum.chiarisupport.org/u/Zaid_BFintern)\ **Replies:** 0\ **Last updated:** [September 12, 2018, 6:06pm UTC](https://forum.chiarisupport.org/t/welcome-marisa/11576 "2018-09-12T18:06:55Z")
@marisal98 Lets all welcome Marisa LeMoine from Tenessee! Marisa, I can empathize with you. I’m around your age (one year older) and know that it must be extremely difficult to not be able to do something you enjoy bec… --- ## [Welcome Craig!](https://forum.chiarisupport.org/t/welcome-craig/11575)
**Author:** [@Zaid\_BFintern](https://forum.chiarisupport.org/u/Zaid_BFintern)\ **Replies:** 0\ **Last updated:** [September 12, 2018, 6:02pm UTC](https://forum.chiarisupport.org/t/welcome-craig/11575 "2018-09-12T18:02:11Z")
@craigc3030 Lets all give a warm welcome to Craig Carpenter from Maine! Craig, it seems like you are in a tough place - you got the diagnosis that you wanted, but it seems like there is no solution. I know that you wil… --- ## [Welcome Tina!](https://forum.chiarisupport.org/t/welcome-tina/11574)
**Author:** [@Zaid\_BFintern](https://forum.chiarisupport.org/u/Zaid_BFintern)\ **Replies:** 0\ **Last updated:** [September 12, 2018, 5:58pm UTC](https://forum.chiarisupport.org/t/welcome-tina/11574 "2018-09-12T17:58:17Z")
@TinaGum Let’s all give a warm welcome to Tina from Virginia! I took a look at your profile and I can empathize with you - the fact that you’ve seen2 neurosurgeons and neither of them gave you conclusive results must … --- ## [New Member - recently diagnosed!](https://forum.chiarisupport.org/t/new-member-recently-diagnosed/11550)
**Author:** [@spt1993](https://forum.chiarisupport.org/u/spt1993)\ **Replies:** 2\ **Last updated:** [September 8, 2018, 5:16pm UTC](https://forum.chiarisupport.org/t/new-member-recently-diagnosed/11550 "2018-09-08T17:16:38Z")
Hello everyone! I was recently diagnosed with Chiari Malformation I by accident. I just gave birth (to a wonderful baby girl) and right after that everything went downhill. In the first few days after giving birth, I was… --- ## [Delete account](https://forum.chiarisupport.org/t/delete-account/11529)
**Author:** [@anon73826747](https://forum.chiarisupport.org/u/anon73826747)\ **Replies:** 1\ **Last updated:** [September 3, 2018, 7:48pm UTC](https://forum.chiarisupport.org/t/delete-account/11529 "2018-09-03T19:48:00Z")
Can someone tell me how to remove my account? [Previous page](https://forum.chiarisupport.org/c/welcome/23.md?page=1) [Next page](https://forum.chiarisupport.org/c/welcome/23.md?page=3)