# Welcome **URL:** https://forum.chiarisupport.org/c/welcome/23.md?page=1 [Latest](https://forum.chiarisupport.org/latest.md) · [Categories](https://forum.chiarisupport.org/categories.md) · [Tags](https://forum.chiarisupport.org/tags.md) **Page:** 2 --- ## [Lord please heal my brain](https://forum.chiarisupport.org/t/lord-please-heal-my-brain/13448)
**Author:** [@Bubbles](https://forum.chiarisupport.org/u/Bubbles)\ **Replies:** 0\ **Last updated:** [May 8, 2020, 6:56am UTC](https://forum.chiarisupport.org/t/lord-please-heal-my-brain/13448 "2020-05-08T06:56:11Z")
--- ## [Chronic daily headaches after surgery](https://forum.chiarisupport.org/t/chronic-daily-headaches-after-surgery/10275)
**Author:** [@jpittman10](https://forum.chiarisupport.org/u/jpittman10)\ **Replies:** 12\ **Last updated:** [May 2, 2020, 5:56pm UTC](https://forum.chiarisupport.org/t/chronic-daily-headaches-after-surgery/10275 "2020-05-02T17:56:02Z")
My son was diagnosed when he was 4 years old. We had 3 surgeries & stayed in the hospital close to 4 months because of so many complications. Rough year after that…then about 2 good years. (His syrnx is smaller but still… --- ## [Hello i am new so bear with me](https://forum.chiarisupport.org/t/hello-i-am-new-so-bear-with-me/13117)
**Author:** [@Debmol62](https://forum.chiarisupport.org/u/Debmol62)\ **Replies:** 18\ **Last updated:** [April 27, 2020, 4:42pm UTC](https://forum.chiarisupport.org/t/hello-i-am-new-so-bear-with-me/13117 "2020-04-27T16:42:56Z")
Hi, I am a 57 year old Woman & Widow that has no Family and i am on Disability due to all my surgeries and live in Port Huron Michigan… i live in constant unbearable pain. and i want to give up cuz i can’t take it no … --- ## [A little about my story](https://forum.chiarisupport.org/t/a-little-about-my-story/13384)
**Author:** [@JessieJames](https://forum.chiarisupport.org/u/JessieJames)\ **Replies:** 3\ **Last updated:** [April 23, 2020, 4:34am UTC](https://forum.chiarisupport.org/t/a-little-about-my-story/13384 "2020-04-23T04:34:10Z")
Hi everyone! I’m Jessica and my boyfriend is James (hence the name) Wow Chiari! It can be something that can stop you right in your tracks. So my boyfrind who is 42, just found out at the beginning of the month he has … --- ## [Vegan Chiarian, not much "pain" yet](https://forum.chiarisupport.org/t/vegan-chiarian-not-much-pain-yet/10883)
**Author:** [@Cynjo](https://forum.chiarisupport.org/u/Cynjo)\ **Replies:** 1\ **Last updated:** [April 9, 2020, 4:11am UTC](https://forum.chiarisupport.org/t/vegan-chiarian-not-much-pain-yet/10883 "2020-04-09T04:11:59Z")
I’m 42. 12 years ago thought I had MS, got an MRI, doc told me my brain was perfect and made me feel crazy. Turns out I had 4mm herniation then. My symptoms went away, and I was great until May 2017. I think that I cause… --- ## [Totally New](https://forum.chiarisupport.org/t/totally-new/13335)
**Author:** [@anon76584752](https://forum.chiarisupport.org/u/anon76584752)\ **Replies:** 3\ **Last updated:** [April 9, 2020, 11:16am UTC](https://forum.chiarisupport.org/t/totally-new/13335 "2020-04-09T11:16:17Z")
Due to Covid, my MRI has been delayed for 2 months. I’ve been going to an amazing chiropractor for almost a year now, & she believes I have chiari. I’d never heard of it before, but after reading through alot of medica… --- ## [Chiropractor after diagnosis](https://forum.chiarisupport.org/t/chiropractor-after-diagnosis/13206)
**Author:** [@kkdaycare75](https://forum.chiarisupport.org/u/kkdaycare75)\ **Replies:** 11\ **Last updated:** [April 6, 2020, 11:57pm UTC](https://forum.chiarisupport.org/t/chiropractor-after-diagnosis/13206 "2020-04-06T23:57:46Z")
Hi, I was wondering if there were any success stories for symptom relief with Chiropractors after being diagnosed with Chiari Type 1? Has massage, red light therapy, acupuncture, or any low velocity adjustments or trea… --- ## [Newbie here! Hi!](https://forum.chiarisupport.org/t/newbie-here-hi/13315)
**Author:** [@Kylieowen](https://forum.chiarisupport.org/u/Kylieowen)\ **Replies:** 6\ **Last updated:** [March 26, 2020, 1:20pm UTC](https://forum.chiarisupport.org/t/newbie-here-hi/13315 "2020-03-26T13:20:41Z")
Hi everyone! I’m new here and I wanted to introduce myself. I’m Kylie and I live in Iowa. I am a mom of two amazing kiddos, Emma-12 and Drake-9. I was recently diagnosed via mri which I had due to becoming extremely s… --- ## [Recently diagnosed and anxious](https://forum.chiarisupport.org/t/recently-diagnosed-and-anxious/13296)
**Author:** [@Camdan](https://forum.chiarisupport.org/u/Camdan)\ **Replies:** 1\ **Last updated:** [March 15, 2020, 11:24pm UTC](https://forum.chiarisupport.org/t/recently-diagnosed-and-anxious/13296 "2020-03-15T23:24:42Z")
Hi everyone, although this is my first post I have spent the last 6 weeks reading through all the discussions to try to make sense as to what is going on with me. After 3 years of feeling like a hypochondriac I was fina… --- ## [Growing Syrinx post 2012 Chiari 1 Decompression](https://forum.chiarisupport.org/t/growing-syrinx-post-2012-chiari-1-decompression/13286)
**Author:** [@Tahoemom](https://forum.chiarisupport.org/u/Tahoemom)\ **Replies:** 0\ **Last updated:** [March 14, 2020, 4:03am UTC](https://forum.chiarisupport.org/t/growing-syrinx-post-2012-chiari-1-decompression/13286 "2020-03-14T04:03:39Z")
Hi All! New to the group. I am a 47 year old married Mom of 1 (18 yr old). My decompression surgery was in 2012. My primary symptoms were exertional headaches and neck pain. Over the years, I continued to receive neur… --- ## [New and need love and support](https://forum.chiarisupport.org/t/new-and-need-love-and-support/13277)
**Author:** [@NikkiChiaristrong](https://forum.chiarisupport.org/u/NikkiChiaristrong)\ **Replies:** 0\ **Last updated:** [March 12, 2020, 11:50am UTC](https://forum.chiarisupport.org/t/new-and-need-love-and-support/13277 "2020-03-12T11:50:47Z")
Hello everyone I waited a long time to actually write something mostly because at first i thought I was the only one experiencing this pain but what I want to know how about your decision making your anxiety or depressio… --- ## [New & Concerned](https://forum.chiarisupport.org/t/new-concerned/13250)
**Author:** [@Graham25](https://forum.chiarisupport.org/u/Graham25)\ **Replies:** 14\ **Last updated:** [March 7, 2020, 3:15pm UTC](https://forum.chiarisupport.org/t/new-concerned/13250 "2020-03-07T15:15:31Z")
Hey y’all, my name is Diana and I’m 25 years old, from Columbia, SC. I was diagnosed with chiari malformation in January along with a syrinx on my spine. This was determined after and EMG, nerve study and MRI. I was refe… --- ## [Hello.. I guess](https://forum.chiarisupport.org/t/hello-i-guess/12759)
**Author:** [@leirae](https://forum.chiarisupport.org/u/leirae)\ **Replies:** 3\ **Last updated:** [March 4, 2020, 3:36pm UTC](https://forum.chiarisupport.org/t/hello-i-guess/12759 "2020-03-04T15:36:27Z")
I recently decided to find some sort of support. Mainly because there is nobody close to me with any sort of Chiari. I feel like I’m not welcome in any of the groups I’ve tried. With that being said, hello I’m Leigha. I … --- ## [Looking for Referral to a specialist](https://forum.chiarisupport.org/t/looking-for-referral-to-a-specialist/13177)
**Author:** [@Dragonfly](https://forum.chiarisupport.org/u/Dragonfly)\ **Replies:** 7\ **Last updated:** [February 24, 2020, 5:48pm UTC](https://forum.chiarisupport.org/t/looking-for-referral-to-a-specialist/13177 "2020-02-24T17:48:21Z")
Hi I am looking for any advice on finding a referral to a Chiari specialist in the Midwest. I have an appointment with my first neurosurgeon on 2/27. I would like to see someone who specializes so I can be sure surgery … --- ## [Hi! I’m new and a little scared!](https://forum.chiarisupport.org/t/hi-i-m-new-and-a-little-scared/13163)
**Author:** [@Felicia](https://forum.chiarisupport.org/u/Felicia)\ **Replies:** 13\ **Last updated:** [February 15, 2020, 12:55pm UTC](https://forum.chiarisupport.org/t/hi-i-m-new-and-a-little-scared/13163 "2020-02-15T12:55:59Z")
Hi there! :hugs: I was diagnosed in November 2019 and just had my 2nd appointment with my neurosurgeon yesterday. He told me that we will be moving forward with surgery. I’ve always been very blessed to be healthy until… --- ## [Newly Diagnosed, Lots to Learn](https://forum.chiarisupport.org/t/newly-diagnosed-lots-to-learn/13073)
**Author:** [@kendallmcn](https://forum.chiarisupport.org/u/kendallmcn)\ **Replies:** 1\ **Last updated:** [February 23, 2020, 1:29am UTC](https://forum.chiarisupport.org/t/newly-diagnosed-lots-to-learn/13073 "2020-02-23T01:29:24Z")
Hey everybody. So I just got the call about Chiari from my neurologist a couple weeks ago and have been at a loss for information since. I have epilepsy, so I went in for a routine MRI back in December. When my neurologi… --- ## [An Upbeat Post 8 years after surgery](https://forum.chiarisupport.org/t/an-upbeat-post-8-years-after-surgery/13167)
**Author:** [@WhatsForDinner](https://forum.chiarisupport.org/u/WhatsForDinner)\ **Replies:** 5\ **Last updated:** [February 20, 2020, 10:09pm UTC](https://forum.chiarisupport.org/t/an-upbeat-post-8-years-after-surgery/13167 "2020-02-20T22:09:57Z")
Good outcomes are possible. Eight years out, I am active (I swim five days a week), healthy, and essentially symptom free. I feel very fortunate, and drop in every few years to report back to the community. When things… --- ## [I am all new to this,53 years](https://forum.chiarisupport.org/t/i-am-all-new-to-this-53-years/13125)
**Author:** [@NancyDD](https://forum.chiarisupport.org/u/NancyDD)\ **Replies:** 5\ **Last updated:** [February 17, 2020, 5:41pm UTC](https://forum.chiarisupport.org/t/i-am-all-new-to-this-53-years/13125 "2020-02-17T17:41:54Z")
I just found out 2 weeks ago have to have surgery, for chiari,already have all kinds of symptoms, --- ## [Newly diagnosed December 6 2019](https://forum.chiarisupport.org/t/newly-diagnosed-december-6-2019/12911)
**Author:** [@Mia519](https://forum.chiarisupport.org/u/Mia519)\ **Replies:** 14\ **Last updated:** [February 2, 2020, 12:02pm UTC](https://forum.chiarisupport.org/t/newly-diagnosed-december-6-2019/12911 "2020-02-02T12:02:53Z")
My neurologist is not helping me with any explanations to my questions. His nurses called me didn’t tell me anything other than I need to see a neurosurgeon I had go to my patient chart online and Google what I had. Chi… --- ## [Hello to all, I’m new](https://forum.chiarisupport.org/t/hello-to-all-i-m-new/12831)
**Author:** [@Choc](https://forum.chiarisupport.org/u/Choc)\ **Replies:** 5\ **Last updated:** [February 1, 2020, 4:22am UTC](https://forum.chiarisupport.org/t/hello-to-all-i-m-new/12831 "2020-02-01T04:22:40Z")
Good day! I am grateful to find this group. I am from Singapore. CM is rare and I cannot find any friend who knows enough to chat with. Here’s my story. I woke up on Christmas day 2018 with numbness on 2 fingers. It p… --- ## [Hello chiari peeps. Recovering from 2nd decompression surgery](https://forum.chiarisupport.org/t/hello-chiari-peeps-recovering-from-2nd-decompression-surgery/12930)
**Author:** [@Css2141](https://forum.chiarisupport.org/u/Css2141)\ **Replies:** 4\ **Last updated:** [December 18, 2019, 10:28am UTC](https://forum.chiarisupport.org/t/hello-chiari-peeps-recovering-from-2nd-decompression-surgery/12930 "2019-12-18T10:28:24Z")
Hello everyone, I am new to the group and home recovering from a second decompression surgery. This one has been a rough recovery. Anyone in Houston? --- ## [Explaining to my Boss?](https://forum.chiarisupport.org/t/explaining-to-my-boss/9915)
**Author:** [@KathrynP](https://forum.chiarisupport.org/u/KathrynP)\ **Replies:** 8\ **Last updated:** [December 17, 2019, 9:30am UTC](https://forum.chiarisupport.org/t/explaining-to-my-boss/9915 "2019-12-17T09:30:45Z")
I'm struggling with how to tell my bosses about this. I've told them I had an MRI and I have to go see a neurosurgeon, but I haven't really explained things. Here is why - I am 35 working with mostly women in their … --- ## [Anyone in Portland, Oregon?](https://forum.chiarisupport.org/t/anyone-in-portland-oregon/12809)
**Author:** [@Memes](https://forum.chiarisupport.org/u/Memes)\ **Replies:** 5\ **Last updated:** [December 12, 2019, 5:50am UTC](https://forum.chiarisupport.org/t/anyone-in-portland-oregon/12809 "2019-12-12T05:50:26Z")
Hi everyone! This is my first experience with this support group and I am feeling so grateful to have found it. I am 35 years old and was just diagnosed about 1 month ago although I have had issues for as long as I can… --- ## [Newly diagnosed and scared](https://forum.chiarisupport.org/t/newly-diagnosed-and-scared/12718)
**Author:** [@pj1986](https://forum.chiarisupport.org/u/pj1986)\ **Replies:** 6\ **Last updated:** [December 7, 2019, 1:44pm UTC](https://forum.chiarisupport.org/t/newly-diagnosed-and-scared/12718 "2019-12-07T13:44:30Z")
Brief history: migraines since I was 12/13. Recently changed, facial numbness and ice-pick pain above eye and side of face. Pain over jaw. Three weeks ago I developed disequilibrium, feeling constantly unsteady, even wh… --- ## [Hi Everyone, I am Angel](https://forum.chiarisupport.org/t/hi-everyone-i-am-angel/12806)
**Author:** [@myangelface](https://forum.chiarisupport.org/u/myangelface)\ **Replies:** 6\ **Last updated:** [November 18, 2019, 12:37pm UTC](https://forum.chiarisupport.org/t/hi-everyone-i-am-angel/12806 "2019-11-18T12:37:13Z")
My name is Angel. My 11 yo daughter was diagnosed about 4 months ago with Chiari and a 5mm herniation. Her symptoms have progressed rapidly and are intensifying as well. Honestly now that I know about Chiari, I would say… --- ## [I'm not sure what to say to doctor](https://forum.chiarisupport.org/t/im-not-sure-what-to-say-to-doctor/12766)
**Author:** [@Kiwi](https://forum.chiarisupport.org/u/Kiwi)\ **Replies:** 4\ **Last updated:** [November 12, 2019, 9:15pm UTC](https://forum.chiarisupport.org/t/im-not-sure-what-to-say-to-doctor/12766 "2019-11-12T21:15:06Z")
Hi all, found this site a few days ago. I was diagnosed with fibromyalgia a few years ago. Finally went down the route of getting home help and personal cares. Whilst going through the assessment for this I noticed th… --- ## [Heart fluttering/palpitations](https://forum.chiarisupport.org/t/heart-fluttering-palpitations/10418)
**Author:** [@Tats](https://forum.chiarisupport.org/u/Tats)\ **Replies:** 15\ **Last updated:** [November 11, 2019, 8:36pm UTC](https://forum.chiarisupport.org/t/heart-fluttering-palpitations/10418 "2019-11-11T20:36:03Z")
Hi i have noticed my heart fluttering sometimes which is unusual. Im 37 years old, a vegetarian and am not over weight. Does anyone else experience heart palpitations ? --- ## [Hi everyone, I’m Lora](https://forum.chiarisupport.org/t/hi-everyone-i-m-lora/12783)
**Author:** [@Lwahamaa](https://forum.chiarisupport.org/u/Lwahamaa)\ **Replies:** 2\ **Last updated:** [November 9, 2019, 2:59am UTC](https://forum.chiarisupport.org/t/hi-everyone-i-m-lora/12783 "2019-11-09T02:59:46Z")
My name is Lora, I’m from Ontario! I’m in my early 20s, trying to start my own life. I try to do as much as I can, I’m very happy to have found this group. I got my official in January 2019. I had been having the sympto… --- ## [Veteran with Chiari Malformation Type 1 Ins. Questions](https://forum.chiarisupport.org/t/veteran-with-chiari-malformation-type-1-ins-questions/9877)
**Author:** [@Samantha1](https://forum.chiarisupport.org/u/Samantha1)\ **Replies:** 6\ **Last updated:** [September 5, 2019, 7:49pm UTC](https://forum.chiarisupport.org/t/veteran-with-chiari-malformation-type-1-ins-questions/9877 "2019-09-05T19:49:06Z")
Does anyone have any information/experience on Veterans being seen at the Mayo Clinic for CM1? I have Medicare and the VA usually covers extra charges. However, I'm told I would still need supplemental insurance in order… --- ## [Just diagnosed 2 days ago](https://forum.chiarisupport.org/t/just-diagnosed-2-days-ago/12504)
**Author:** [@Plottwist99](https://forum.chiarisupport.org/u/Plottwist99)\ **Replies:** 4\ **Last updated:** [July 11, 2019, 8:26pm UTC](https://forum.chiarisupport.org/t/just-diagnosed-2-days-ago/12504 "2019-07-11T20:26:47Z")
So I’m obviously new here. I have joined a few fb groups but needed somewhere else to be for when I close out my fb. So about me… I’m mom to 3 kiddos with autism, a wife to a CRPS warrior husband and a chicken, goat and … [Previous page](https://forum.chiarisupport.org/c/welcome/23.md) [Next page](https://forum.chiarisupport.org/c/welcome/23.md?page=2)