# Surgery and Recovery **URL:** https://forum.chiarisupport.org/c/symptoms/surgery-and-recovery/8.md?page=1 [Latest](https://forum.chiarisupport.org/latest.md) · [Categories](https://forum.chiarisupport.org/categories.md) · [Tags](https://forum.chiarisupport.org/tags.md) **Page:** 2 --- ## [Finding a neurosurgeon. Getting insurance coverage out of state](https://forum.chiarisupport.org/t/finding-a-neurosurgeon-getting-insurance-coverage-out-of-state/13782)
**Author:** [@Natniss98](https://forum.chiarisupport.org/u/Natniss98)\ **Replies:** 3\ **Last updated:** [November 3, 2020, 11:13pm UTC](https://forum.chiarisupport.org/t/finding-a-neurosurgeon-getting-insurance-coverage-out-of-state/13782 "2020-11-03T23:13:37Z")
Does anyone have any suggestions on finding a good Chiari specialist/neurosurgeon? Also I don’t have out of network coverage and I might have to travel out of state. Does anybody have advice? --- ## [Frustration continues](https://forum.chiarisupport.org/t/frustration-continues/13776)
**Author:** [@Charlee](https://forum.chiarisupport.org/u/Charlee)\ **Replies:** 9\ **Last updated:** [October 29, 2020, 5:26am UTC](https://forum.chiarisupport.org/t/frustration-continues/13776 "2020-10-29T05:26:22Z")
Saw the neurosurgeon yesterday. He says No to a Chiari-related respiratory difficulties (chronic progressive dyspnea, respiratory failure), because it is not big enough (5.5mm) to block flow and/or affect nerves related … --- ## [After surgery do i have to keep living with restrictions?](https://forum.chiarisupport.org/t/after-surgery-do-i-have-to-keep-living-with-restrictions/13761)
**Author:** [@Natniss98](https://forum.chiarisupport.org/u/Natniss98)\ **Replies:** 5\ **Last updated:** [October 21, 2020, 3:44pm UTC](https://forum.chiarisupport.org/t/after-surgery-do-i-have-to-keep-living-with-restrictions/13761 "2020-10-21T15:44:23Z")
When I have surgery Will I be able to ride roller coasters, jump on trampolines, jet ski, run Exedra again? Or are those things I can never do again? Also does anyone know if snowboarding is considered safe when you have… --- ## [1 Year Post Op Recovery Experience](https://forum.chiarisupport.org/t/1-year-post-op-recovery-experience/13359)
**Author:** [@thoughtfullysublime](https://forum.chiarisupport.org/u/thoughtfullysublime)\ **Replies:** 2\ **Last updated:** [October 19, 2020, 4:17pm UTC](https://forum.chiarisupport.org/t/1-year-post-op-recovery-experience/13359 "2020-10-19T16:17:23Z")
Hello everyone! My name is Sublime, and I am 16 years old. On April 1st, 2019, I had a Chiari Malformation Decompression. Which means, I am now officially 1 year post op, and RECOVERED. It feels amazing, and I am ecstati… --- ## [After surgery migraines](https://forum.chiarisupport.org/t/after-surgery-migraines/13720)
**Author:** [@Mrs.Awesome](https://forum.chiarisupport.org/u/Mrs.Awesome)\ **Replies:** 4\ **Last updated:** [October 5, 2020, 4:31pm UTC](https://forum.chiarisupport.org/t/after-surgery-migraines/13720 "2020-10-05T16:31:53Z")
I had surgery 3 months ago. Things were starting to get better. I was able to walk around a bit better and it seemed like my migraines disappeared. I do have a pinched nerve as well as degenerative disc in my upper neck.… --- ## [How my surgery went, and recovery so far](https://forum.chiarisupport.org/t/how-my-surgery-went-and-recovery-so-far/12275)
**Author:** [@thoughtfullysublime](https://forum.chiarisupport.org/u/thoughtfullysublime)\ **Replies:** 10\ **Last updated:** [September 29, 2020, 9:17pm UTC](https://forum.chiarisupport.org/t/how-my-surgery-went-and-recovery-so-far/12275 "2020-09-29T21:17:26Z")
I had a chiari decompression on April 1st, of this year, and oh boy it was a lot. I am 15 years old, and I am currently in online school. Preparation for the surgery was pretty simple: I wasn’t going to try to brush my … --- ## [Lifting and carrying my baby after surgery?](https://forum.chiarisupport.org/t/lifting-and-carrying-my-baby-after-surgery/13716)
**Author:** [@Natniss98](https://forum.chiarisupport.org/u/Natniss98)\ **Replies:** 6\ **Last updated:** [September 27, 2020, 5:51pm UTC](https://forum.chiarisupport.org/t/lifting-and-carrying-my-baby-after-surgery/13716 "2020-09-27T17:51:00Z")
I was recently diagnosed with chiari and I have a one year old daughter. I was wondering. When I have surgery, will I be able to lift or carry her within a few weeks? :pensive: She weighs 24 pounds. --- ## [Almost 3 months Post op](https://forum.chiarisupport.org/t/almost-3-months-post-op/13637)
**Author:** [@Mrs.Awesome](https://forum.chiarisupport.org/u/Mrs.Awesome)\ **Replies:** 1\ **Last updated:** [August 22, 2020, 10:03pm UTC](https://forum.chiarisupport.org/t/almost-3-months-post-op/13637 "2020-08-22T22:03:31Z")
Hey beautiful chiarians! I am almost 3months post surgery and things have been going well. I have been noticing that my scar hurts randomly and the pain is pretty sharp like a stabbing pain. Is this normal? --- ## [I had surgery last week](https://forum.chiarisupport.org/t/i-had-surgery-last-week/13530)
**Author:** [@Mrs.Awesome](https://forum.chiarisupport.org/u/Mrs.Awesome)\ **Replies:** 6\ **Last updated:** [August 22, 2020, 12:26am UTC](https://forum.chiarisupport.org/t/i-had-surgery-last-week/13530 "2020-08-22T00:26:26Z")
Hi everybody, I just had decompression surgery on Monday June 8th. It was successful. I’m still in a lot of pain so I can’t tell if there is a difference at this point. My wound looks good. No swelling or bleeding. I’ve… --- ## [Four days post operation](https://forum.chiarisupport.org/t/four-days-post-operation/12631)
**Author:** [@SAK1079](https://forum.chiarisupport.org/u/SAK1079)\ **Replies:** 6\ **Last updated:** [August 21, 2020, 3:42pm UTC](https://forum.chiarisupport.org/t/four-days-post-operation/12631 "2020-08-21T15:42:45Z")
Hello, I had suboccipital decompression, c1 laminectomy with autologous duraplasty August 28th. It went well, the bone of c1 was thicker than the surgeon expected from my scans so it was creating more compression. My cu… --- ## [1 month post op](https://forum.chiarisupport.org/t/1-month-post-op/13576)
**Author:** [@Mrs.Awesome](https://forum.chiarisupport.org/u/Mrs.Awesome)\ **Replies:** 2\ **Last updated:** [July 24, 2020, 4:21pm UTC](https://forum.chiarisupport.org/t/1-month-post-op/13576 "2020-07-24T16:21:37Z")
So I had surgery one month ago. I have a lot more good days than bad. But I’m still getting migraines! I don’t know if this is normal or not. I had a follow-up and everything looks great according to the neurosurgeon. Bu… --- ## [What can happen if you lift too much after surgery?](https://forum.chiarisupport.org/t/what-can-happen-if-you-lift-too-much-after-surgery/13543)
**Author:** [@Dragonfly](https://forum.chiarisupport.org/u/Dragonfly)\ **Replies:** 5\ **Last updated:** [June 29, 2020, 2:54am UTC](https://forum.chiarisupport.org/t/what-can-happen-if-you-lift-too-much-after-surgery/13543 "2020-06-29T02:54:44Z")
I was feeling really good and then I wasn’t thinking and I lifted about 20 lbs and my surgery was 3 months ago that included opening the dura and removing the C1. I did the lifting about 4 days ago and my head still hur… --- ## [Surgery questions?](https://forum.chiarisupport.org/t/surgery-questions/13541)
**Author:** [@Jcn1432](https://forum.chiarisupport.org/u/Jcn1432)\ **Replies:** 2\ **Last updated:** [June 28, 2020, 4:23am UTC](https://forum.chiarisupport.org/t/surgery-questions/13541 "2020-06-28T04:23:52Z")
My doctor has recommended surgery for my Chiari due to the symptoms I’ve been having. I haven’t made my mind up yet. I was doing some research and found there is a less invasive procedure where they don’t cut through the… --- ## [Surgery sutures](https://forum.chiarisupport.org/t/surgery-sutures/13540)
**Author:** [@Mrs.Awesome](https://forum.chiarisupport.org/u/Mrs.Awesome)\ **Replies:** 3\ **Last updated:** [June 28, 2020, 2:36am UTC](https://forum.chiarisupport.org/t/surgery-sutures/13540 "2020-06-28T02:36:48Z")
After your surgery , I was told that I had to go and see my primary care to remove my sutures because my neurosurgeon couldn’t see me for my follow-up. After PCP removed the glue, he said there were no sutures. Did anyb… --- ## [Life changing surgery](https://forum.chiarisupport.org/t/life-changing-surgery/13481)
**Author:** [@Ktbelcher](https://forum.chiarisupport.org/u/Ktbelcher)\ **Replies:** 9\ **Last updated:** [June 14, 2020, 11:30pm UTC](https://forum.chiarisupport.org/t/life-changing-surgery/13481 "2020-06-14T23:30:20Z")
I am 32 and I was living my life the past two years, miserable. I have lived most of my young adult/adult life with migraines and headaches. I just figured it was genetic, my grandma always had migraines. Then the last t… --- ## [Episodes up and down after surgery](https://forum.chiarisupport.org/t/episodes-up-and-down-after-surgery/13502)
**Author:** [@Dragonfly](https://forum.chiarisupport.org/u/Dragonfly)\ **Replies:** 2\ **Last updated:** [June 13, 2020, 10:42am UTC](https://forum.chiarisupport.org/t/episodes-up-and-down-after-surgery/13502 "2020-06-13T10:42:32Z")
I am 10 weeks post decompression and I keep having symptoms come and go. I was feeling really good but I still took it easy and didn’t bend or lift. Then when I went to bed I suddenly had pressure in my head that woke m… --- ## [Recent surgery (heart and vision questions)](https://forum.chiarisupport.org/t/recent-surgery-heart-and-vision-questions/13096)
**Author:** [@Ktbelcher](https://forum.chiarisupport.org/u/Ktbelcher)\ **Replies:** 13\ **Last updated:** [June 6, 2020, 12:36pm UTC](https://forum.chiarisupport.org/t/recent-surgery-heart-and-vision-questions/13096 "2020-06-06T12:36:02Z")
I just had my surgery a little over 2 weeks ago. I found out about having Chiari 11/14/19 after life long headaches. But in 2018 I started to have double vision and then began to lose my balance. Walking became incredibl… --- ## [Struggling after decompression with duraplasty](https://forum.chiarisupport.org/t/struggling-after-decompression-with-duraplasty/13451)
**Author:** [@Careys83](https://forum.chiarisupport.org/u/Careys83)\ **Replies:** 0\ **Last updated:** [May 9, 2020, 1:51pm UTC](https://forum.chiarisupport.org/t/struggling-after-decompression-with-duraplasty/13451 "2020-05-09T13:51:14Z")
My daughter, 5 years old, is now home and recovering from her decompression with duraplasty. We are struggling with nausea and vomiting. We have been taking Zofran, prescribed by her doctor, just wondering if this is a… --- ## [Hi, Chiarians!](https://forum.chiarisupport.org/t/hi-chiarians/13423)
**Author:** [@Jake.Therese](https://forum.chiarisupport.org/u/Jake.Therese)\ **Replies:** 1\ **Last updated:** [May 6, 2020, 11:24pm UTC](https://forum.chiarisupport.org/t/hi-chiarians/13423 "2020-05-06T23:24:14Z")
I am about 21 months post op - removal of C1 vertebrae and about a one inch square piece of the back of my skull. I am having neck problems, and really, my neck has been sore on and off post op. The last few months, my… --- ## [Thuli post op](https://forum.chiarisupport.org/t/thuli-post-op/13396)
**Author:** [@Thuli123](https://forum.chiarisupport.org/u/Thuli123)\ **Replies:** 1\ **Last updated:** [April 23, 2020, 5:02pm UTC](https://forum.chiarisupport.org/t/thuli-post-op/13396 "2020-04-23T17:02:55Z")
Hi I’m Thuli, I had my surgery on 23March where my c1, vertebrae was removed, all went well but 2,weeks later I went back to hospital with an infection on10April, I’m supposed to be released tomorrow with oral antibiotic… --- ## [Shoulder blade/trapezius pain - Post surgery](https://forum.chiarisupport.org/t/shoulder-blade-trapezius-pain-post-surgery/13381)
**Author:** [@Sophia1021](https://forum.chiarisupport.org/u/Sophia1021)\ **Replies:** 2\ **Last updated:** [April 18, 2020, 2:41am UTC](https://forum.chiarisupport.org/t/shoulder-blade-trapezius-pain-post-surgery/13381 "2020-04-18T02:41:04Z")
I am almost three months post decompression surgery, for chiari type1 with large syrinx. I have been getting better week to week - ( in fact I was back at work by week 4). Some nausea, headaches but mostly ok. HOWEVER-… --- ## [New member, CSF leak](https://forum.chiarisupport.org/t/new-member-csf-leak/10484)
**Author:** [@KaitlynFaye10](https://forum.chiarisupport.org/u/KaitlynFaye10)\ **Replies:** 2\ **Last updated:** [April 2, 2020, 12:23am UTC](https://forum.chiarisupport.org/t/new-member-csf-leak/10484 "2020-04-02T00:23:29Z")
Hi, I am a new member. But I had decompression surgery on 11/6. I thought I was doing good until last Saturday I had to go back in to have a CSF leak repaired. They went in a said some of the stitches had come off. My qu… --- ## [Surgery during pandemic](https://forum.chiarisupport.org/t/surgery-during-pandemic/13312)
**Author:** [@Dragonfly](https://forum.chiarisupport.org/u/Dragonfly)\ **Replies:** 5\ **Last updated:** [March 28, 2020, 12:46am UTC](https://forum.chiarisupport.org/t/surgery-during-pandemic/13312 "2020-03-28T00:46:30Z")
I am scheduled for surgery in only 3 days. I am having second thoughts and wondering if I should wait out this covd-19 pandemic. The thing of it is: we don’t know how long this pandemic will last. If I don’t rush the … --- ## [Sleep issues?](https://forum.chiarisupport.org/t/sleep-issues/13230)
**Author:** [@Jaustin2007](https://forum.chiarisupport.org/u/Jaustin2007)\ **Replies:** 13\ **Last updated:** [March 12, 2020, 3:59pm UTC](https://forum.chiarisupport.org/t/sleep-issues/13230 "2020-03-12T15:59:35Z")
Anyone have change in sleep after surgery? Better or worse? --- ## [One month post op questions](https://forum.chiarisupport.org/t/one-month-post-op-questions/13229)
**Author:** [@Jaustin2007](https://forum.chiarisupport.org/u/Jaustin2007)\ **Replies:** 0\ **Last updated:** [March 1, 2020, 8:31pm UTC](https://forum.chiarisupport.org/t/one-month-post-op-questions/13229 "2020-03-01T20:31:39Z")
I am so glad that I opted for the surgery last month! However couple questions for y’all. I am still having bouts of dizziness but I notice they are coming on days that my neck is more stiff. Anyone else have this? How … --- ## [Surgery recovery - London - Positive](https://forum.chiarisupport.org/t/surgery-recovery-london-positive/13196)
**Author:** [@Sophia1021](https://forum.chiarisupport.org/u/Sophia1021)\ **Replies:** 4\ **Last updated:** [February 29, 2020, 8:36pm UTC](https://forum.chiarisupport.org/t/surgery-recovery-london-positive/13196 "2020-02-29T20:36:57Z")
I was going to the gym twice a day and working two jobs. I used to get a killer pain under my right shoulder blade and pain in right now my neck. Also tingling and numbness in my right arm. I thought it was from overdoin… --- ## [Should I?](https://forum.chiarisupport.org/t/should-i/12962)
**Author:** [@tlthomas95](https://forum.chiarisupport.org/u/tlthomas95)\ **Replies:** 5\ **Last updated:** [February 24, 2020, 1:54pm UTC](https://forum.chiarisupport.org/t/should-i/12962 "2020-02-24T13:54:22Z")
Hi all! I made a post a few months back about some of my “weird” symptoms that I experience. Thankfully none of my symptoms have worsened since then so I am grateful for that. I have an 8mm chiari (since last checked in… --- ## [Recovery expectations](https://forum.chiarisupport.org/t/recovery-expectations/1307)
**Author:** [@shof07](https://forum.chiarisupport.org/u/shof07)\ **Replies:** 6\ **Last updated:** [February 22, 2020, 7:51pm UTC](https://forum.chiarisupport.org/t/recovery-expectations/1307 "2020-02-22T19:51:04Z")
I am heading for surgery in 3 days. Can anyone tell me what I am about to encounter during recovery time? does it get better? I just want to have a idea of what I am going to encounter. I am hoping to be back to work i… --- ## [3 weeks post surgery lots of questions](https://forum.chiarisupport.org/t/3-weeks-post-surgery-lots-of-questions/12972)
**Author:** [@Sherry2](https://forum.chiarisupport.org/u/Sherry2)\ **Replies:** 4\ **Last updated:** [January 17, 2020, 11:47pm UTC](https://forum.chiarisupport.org/t/3-weeks-post-surgery-lots-of-questions/12972 "2020-01-17T23:47:32Z")
Hello, I have not posted on here in a long time but read posts often. I finally decided to do the decompression surgery after meeting a surgeon who I actually liked and felt comfortable with. He did the decompression and… --- ## [Sleeping suggestions/positions](https://forum.chiarisupport.org/t/sleeping-suggestions-positions/12639)
**Author:** [@SAK1079](https://forum.chiarisupport.org/u/SAK1079)\ **Replies:** 4\ **Last updated:** [January 17, 2020, 11:28am UTC](https://forum.chiarisupport.org/t/sleeping-suggestions-positions/12639 "2020-01-17T11:28:45Z")
Hello, six days post decompression surgery and I am having trouble with sleeping position and getting comfortable. I will ask doctor office today when I call for post operation appointment but wanted to hear suggestions … [Previous page](https://forum.chiarisupport.org/c/symptoms/surgery-and-recovery/8.md) [Next page](https://forum.chiarisupport.org/c/symptoms/surgery-and-recovery/8.md?page=2)